Talking Zebras

conversations with “zebras” across the rare and

undiagnosed world—doctors, researchers, advocates, industry, funders and especially patients and their families, illuminating key developments and trends.

Topics will include new medical developments, policy discussions and spotlights on patient stories.

Our host, Stephanie Tomlinson, is a longtime member of the community who began as a rare parent but who has emerged as a thoughtful and influential voice in the field. She is a co-chair of the Undiagnosed Disease Network Foundation’s PEER (Participant Engagement and Empowerment Resource) and a highly sought-after participant and speaker at gatherings of advocates and thought leaders in the rare world.

Want to know more? Interested in being a guest?