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Telling Our Stories Online: Researching ‘Previvorship’ in the Social Media Era
Summary
In this episode of The Positive Gene Podcast, host Sara Kavanaugh takes the mic on the road in London with Dr. Stefania Vicari and Dr. Hannah Ditchfield of the University of Sheffield. Together, they explore how research into social media is reshaping what we know about hereditary cancer, advocacy, and the very word previvor.
Why does this matter? Because our digital footprints tell powerful stories — and understanding them helps us:
See how platforms influence stigma, visibility, and advocacy
Identify misinformation versus authentic support
Recognize the importance of representation and inclusivity in health narratives
Give both researchers and clinicians new insight into patient experience
This conversation highlights how essential research is in bridging the gap between lived experience, digital culture, and health care.
Resources & Links Mentioned
🎧 Listen now on your favorite podcast app and be sure to follow on Instagram @positivegenepodcast
Disclaimer: This podcast is for informational purposes only and is not a substitute for professional medical advice. Always consult your healthcare provider with any questions about your health.
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By Sara Kavanaugh
5
1010 ratings
Summary
In this episode of The Positive Gene Podcast, host Sara Kavanaugh takes the mic on the road in London with Dr. Stefania Vicari and Dr. Hannah Ditchfield of the University of Sheffield. Together, they explore how research into social media is reshaping what we know about hereditary cancer, advocacy, and the very word previvor.
Why does this matter? Because our digital footprints tell powerful stories — and understanding them helps us:
See how platforms influence stigma, visibility, and advocacy
Identify misinformation versus authentic support
Recognize the importance of representation and inclusivity in health narratives
Give both researchers and clinicians new insight into patient experience
This conversation highlights how essential research is in bridging the gap between lived experience, digital culture, and health care.
Resources & Links Mentioned
🎧 Listen now on your favorite podcast app and be sure to follow on Instagram @positivegenepodcast
Disclaimer: This podcast is for informational purposes only and is not a substitute for professional medical advice. Always consult your healthcare provider with any questions about your health.
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