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The CDKL5 Connection
The CDKL5 Connection episodes
- Episode 1: Welcome to The CDKL5 Connection
Welcome to The CDKL5 Connection! In this first episode, host Raj Rajaraman, MD ("Dr. Raj"), Director of the UCLA CDKL5 Center of Excellence, explains why he started the podcast and what's coming next for the CDKL5 community.
Future episodes will cover clinical trials, new therapies, natural history research and everyday care topics. There will also be expert conversations, community news and a new "Ask Dr. Raj" segment. Send in your questions and topic ideas at cdkl5.com/podcast.
Tune in and join the conversation!
DisclaimerDr. Rajaraman is speaking on behalf of himself as an individual and not on behalf of UCLA. This podcast is for informational purposes only and is not intended as formal medical advice. The information provided is based on available research and expert opinion, but medical knowledge evolves. It should not replace the advice of your own healthcare provider.
6 min
About The CDKL5 Connection
From the publisher's feed
The CDKL5 Connection is the official podcast of the International Foundation for CDKL5 Research (IFCR)—a welcoming space where science, care, and community come…
together.
Hosted primarily by Dr. Raj Rajaraman, a clinician, researcher, and long-time partner of the CDKL5 community, the podcast brings together the voices, questions, and experiences that matter most to individuals and families affected by CDKL5 Deficiency Disorder.
From conversations with families and caregivers to insights from clinicians, researchers, advocates, and community leaders, each episode is designed to inform, encourage, and help our community feel more connected. Through the recurring Ask Dr. Raj segment, listeners are invited to submit questions and hear thoughtful, accessible perspectives on topics that matter in daily life with CDKL5.
You’ll also hear from special guest hosts, expert contributors, and IFCR leadership as they share updates on research, advocacy, family support, educational opportunities, and the progress being made together.
Wherever you are in your CDKL5 journey, The CDKL5 Connection is here to help you learn, feel supported, and stay connected.
DisclaimerDr. Rajaraman is speaking on behalf of himself as an individual and not on behalf of UCLA. This podcast is for informational purposes only and is not intended as formal medical advice. The information provided is based on available research and expert opinion, but medical knowledge evolves. It should not replace the advice of your own healthcare provider.