The Couple Shift | An ALS Story

In this special episode we share both of our perspectives on life after a tracheostomy. Why did Jules decide to go for it? How easy is it for MA to take care of it? What has changed? All this and more. It feels good to be back!

Thanks for listening. With love, Jules & MA

Instagram: @teamhighoctanejules

Website: www.teamhighoctane.com

✉️ Email us: [email protected]

ALS, MND, Terminal Illness, Couple Goals, Marriage, AI, AI Technology, New Beginnings, Don't Give Up, Courage, Resilience

This is another solo quick episode I created with my AI cloned voice to talk about our challenges that we keep running into.

Thank you for seeing us.

With love, Jules & MA

#RightHereRightNow

🎧 Please subscribe, share with friends and leave a review.

⚡️ Follow us on Instagram: @teamhighoctanejules

🧢 Check out our Website: www.teamhighoctane.com

✨ Check out MA's website: https://mariaaleandra.com/

✉️ Email us: [email protected]

ALS, MND, Terminal Illness, Couple Goals, Marriage, AI, AI Technology, New Beginnings, Don't Give Up, Courage, Resilience

It's a new beginning for me. It is just AI voiced Jules. This short episode really challenged me. It is one thing to write out your thoughts. Its another thing to do with your eyes alone and then edit it.

Thank you for seeing us.

With love, Jules & MA

#RightHereRightNow

🎧 Please subscribe, share with friends and leave a review.

⚡️ Follow us on Instagram: @teamhighoctanejules

🧢 Check out our Website: www.teamhighoctane.com

✨ Check out MA's website: https://mariaaleandra.com/

✉️ Email us: [email protected]

ALS, MND, Terminal Illness, Couple Goals, Marriage, AI, AI Technology, New Beginnings, Don't Give Up, Courage, Resilience

Permission to feel, all of it. Learning how to process our emotions as a couple has been a cornerstone of our growth - the good, the painful and everything in between. With ALS in the mix, we've learned powerful lessons about what it takes.

In this episode, we continue to experiment and stumble through new beginnings, thanks for coming along.

Your support makes a difference! Like, comment, rate, subscribe and share.

Thank you,

Jules & MA

#RightHereRightNow

🎧 Please subscribe, share with friends and leave a review!

⚡️ Instagram: @teamhighoctanejules

🧢 Website: www.teamhighoctane.com

✨ MA's website: https://mariaaleandra.com/

✉️ Email us: [email protected]

ALS, MND, Terminal Illness, Couple Goals, Marriage, AI, AI Technology, New Beginnings, Don't Give Up, Courage, Resilience

History in the making perhaps? Either way, we are THRILLED to be back with another episode. Here's to shifting, and then shifting again. Join us for this brand new version of our podcast.

Jules takes his new AI voice for a spin, don't miss it.

Your support makes a difference! Like, comment, rate, subscribe, share share share.

Thank you,

Jules & MA

#RightHereRightNow

🎧 Please subscribe, share with friends and leave a review!

⚡️ Instagram: @teamhighoctanejules

🧢 Website: www.teamhighoctane.com

✨ MA's website: https://mariaaleandra.com/

✉️ Email us: [email protected]

ALS, MND, Terminal Illness, Couple Goals, Marriage, AI, AI Technology, New Beginnings, Don't Give Up, Courage, Resilience

The other day a listener asked us... but what's your word of the year this year?? Here's the answer :) Plus a few highlights and updates from the past couple of weeks.

As always, thanks for being here. And to all our new friends, welcome.

ALS won't stop us.

#RightHereRightNow

🎧 Please subscribe, share with friends and leave a review!

⚡️ Instagram: @teamhighoctanejules

🧢 Website: www.teamhighoctane.com

✨ MA's website: https://mariaaleandra.com/

✉️ Email us: [email protected]

Did you miss us? It's so good to be back! Ever been caught in an awkward moment in conversation, listen in to find out why those awkward moments matter. We also talk about Tobii etiquette and how to speak to someone who uses an eye gaze device or who has trouble communicating.

ALS won't stop us.

#RightHereRightNow

🎧 Please subscribe, share with friends and leave a review!

⚡️ Instagram: @teamhighoctanejules

🧢 Website: www.teamhighoctane.com

📣 MA's DC speech: https://youtu.be/6th6Z5NLlIQ

❤️ GoFundMe: https://gofund.me/77ead571

✨ MA's website: https://mariaaleandra.com/

✉️ Email us: [email protected]

What happens when a simple cold sends you to the ER? This is life with ALS. Join us a we take you through a few recent milestones, both joyful and sorrowful. It feels so good to return to one of our favorite places, in front of the microphone, looking into each other's eyes and sharing all of the feels that accompany this tender and beautiful life we life. We share, we cry, we laugh. The Couple Shift is back, as vulnerable and wonderful as ever. Thank you for being here.

ALS won't stop us.

#RightHereRightNow

🎧 Please subscribe, share with friends and leave a review!

⚡️ Instagram: @teamhighoctanejules

Other ALS podcasts you can support:

I'm dying to tell you: https://imdyingtotellyoupodcast.com/

Beyond MND: https://open.spotify.com/show/7xWlipjW7z9ZD4UA0XWnhL?si=74e7db92b52e47b3

I lost my person: https://open.spotify.com/show/2vQ8NQuLn5GCZ4daJMvXYF?si=d5e610a2d0c74c8f

ALS Caregivers and Beyond: https://rss.com/podcasts/als-caregivers-and-beyond/

🧢 Website: www.teamhighoctane.com

📣 MA's DC speech: https://youtu.be/6th6Z5NLlIQ

❤️ GoFundMe: https://gofund.me/77ead571

✨ MA's website: https://mariaaleandra.com/

✉️ Email us: [email protected]

We're back for an update, sharing honest thoughts that we hadn't even expressed to each other until this moment. Thanks for staying connected with us.

ALS won't stop us.

🎧 Please subscribe, share with friends and leave a review!

⚡️ Follow us our brand new Instagram account! @teamhighoctanejules

🧢 Get your merch: www.teamhighoctane.com

📣 MA's DC speech: https://youtu.be/6th6Z5NLlIQ

❤️ GoFundMe: https://gofund.me/77ead571

✨ MA's website: https://mariaaleandra.com/

✉️ Email us: [email protected]

Lots has happened - from our new beer to the comedy fundraiser to media interviews and a meeting with Conan O'Brien!! (huge bucket list item for Jules!). We've also been through a tougher than expected period as a couple and have welcomed help at home to support Jules care routine. Here's a quick recap of what's been happened - and what it means to be Recharged.

ALS won't stop us.

🎧 Please subscribe, share with friends and leave a review!

⚡️ Follow us our brand new Instagram account! @teamhighoctanejules

🧢 Get your merch: www.teamhighoctane.com

🎤 Comedy fundraiser: https://tinyurl.com/5ctshaxv

📣 MA's DC speech: https://youtu.be/6th6Z5NLlIQ

❤️ GoFundMe: https://gofund.me/77ead571

✨ MA's website: https://mariaaleandra.com/

✉️ Email us: [email protected]