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What is it really like living with Down syndrome — navigating stigma, finding independence, accessing healthcare, and being included in society? And what does Down syndrome have to do with Alzheimer’s disease and brain health?
In this episode of the Brain Health Equity Podcast, Grant Longwe is joined by Dr. Mei Lin Yap, Dr.Rachel Maina and Professor Eimear McGlinchey for an honest and wide-ranging conversation about Down syndrome, disability inclusion, stigma, independence, brain health and dementia.
We explore:
🧠The connection between Down syndrome and Alzheimer’s disease and why people with Down syndrome have a significantly higher risk of Alzheimer’s
🧠What the concept of “stage zero” Alzheimer’s means in the context of Down syndrome
đź§ Living with Down syndrome and the importance of seeing the person beyond the diagnosis
đź§ Stigma, discrimination and social isolation experienced by people with Down syndrome
đź§ Independence, education, employment and the right to live a fulfilling life
đź§ Why families and communities should support independence rather than overprotecting people with disabilities
đź§ Gaps in Down syndrome healthcare, dementia services and research in Africa
đź§ The importance of culturally appropriate cognitive assessment and research
đź§ Why people with Down syndrome must be meaningfully included in research and advocacy
đź§ What Kenya, Ireland and other countries can teach us about building more inclusive systems
Mei Lin also shares her lived experience of Down syndrome, including her journey through education, independence and advocacy — reminding us that people with Down syndrome have their own ambitions, abilities, interests and aspirations.
Rachel brings a psychological and research perspective from Kenya, while Eimear explores the intersection of Down syndrome, brain health and Alzheimer’s disease, including the implications for research and future care.
This is more than a conversation about Down syndrome. It is a conversation about dignity, inclusion, brain health, dementia, disability rights and health equity — and about what it takes to build systems where people with Down syndrome can thrive.
🎙️ Brain Health Equity Podcast
Conversations at the intersection of brain health, dementia, equity, advocacy and lived experience.
How to Stop Being Lonely: Why Connection Matters More Than Ever
Why do we feel lonely even when we are more connected than ever?
In this episode, we explore loneliness, social isolation, emotional loneliness, mental health, and the importance of human connection with Professor Brian Lawlor, a psychiatrist and researcher with decades of experience working in dementia, older adult mental health, and loneliness.
Professor Lawlor shares powerful insights from his clinical experience and research, including why loneliness is more than simply being alone, how it can affect our mental and physical health, and why someone can feel lonely even when surrounded by friends, family, or colleagues.
We also discuss the difference between social loneliness and emotional loneliness, the impact of loneliness on depression and professional burnout, and whether our increasingly digital world is actually helping us connect—or making us more disconnected.
Most importantly, we explore what we can do about loneliness: from rebuilding meaningful relationships and social networks to social prescribing, creating more connected communities, and designing environments that make human connection easier.
As Professor Lawlor puts it:
“Connection heals. Loneliness harms.”
• What loneliness really means
• How to stop being lonely and rebuild meaningful connections
• Social loneliness vs. emotional loneliness
• Loneliness, depression and mental health
• Social isolation and its impact on health
• Why digital connection isn't always meaningful connection
• Professional loneliness, burnout and empathy
• Loneliness across the life course
• The stigma surrounding loneliness
• Social prescribing and practical ways to build connection
• How communities and urban design can reduce loneliness
• Loneliness, social engagement and dementia risk
• Why healthcare professionals need to ask about loneliness
Whether you're experiencing loneliness yourself, supporting someone who is, or working in healthcare, mental health, ageing, dementia, public health, or social care, this conversation offers an important reminder: we are social beings, and meaningful connection is fundamental to our wellbeing.
đź’¬ Have you ever experienced loneliness even when surrounded by people? Share your thoughts in the comments.
đź”” Subscribe for more conversations on dementia, brain health, mental health, healthcare, ageing, advocacy and lived experience.
#Loneliness #HowToStopBeingLonely #MentalHealth #SocialIsolation #SocialConnection #BrainHealth #Dementia #MentalHealthAwareness #Healthcare #PublicHealth
In this episode, we discuss:
đź§ How do menopause, dementia risk, brain fog, and women's health affect brain health? In this episode, neuroscientist Francesca explores the latest research on dementia, Alzheimer's disease, cognitive aging, hormones, and brain health across the lifespan.
We discuss menopause and cognition, dementia prevention, brain health education, healthcare communication, cultural influences on health behaviors, and why women are disproportionately affected by dementia. Francesca also shares insights on biomarkers, global brain health research, and reducing stigma around dementia.
⏱️ Chapters:
00:00 Cultural Perspectives on Diet and Health
01:41 The Emotional Impact of Dementia Diagnosis
06:57 Women's Health and Brain Fog
16:56 Health Supplements and Misinformation
32:17 Menopause and Brain Health
43:21 Reframing Dementia
46:58 Research and Mentorship in Brain Health
đź”— Connect with Francesca:
LinkedIn: https://linkedin.com/in/francesca
Twitter/X: https://twitter.com/francesca
#BrainHealth #Dementia #Alzheimers #WomensHealth #Menopause #Neuroscience #HealthyAging #BrainFog #CognitiveHealth #DementiaPrevention
What if Alzheimer’s disease could be detected—and even prevented—decades before memory loss begins?
In this eye-opening conversation, Professor Craig Ritchie challenges everything we think we know about dementia care, early diagnosis, and the future of Alzheimer’s treatment. From blood biomarkers to prevention in midlife, he explains why the biggest breakthroughs in brain health are happening outside traditional healthcare systems—and why that gives real hope for the future.
For too long, Alzheimer’s has been treated like a death sentence diagnosed too late. But what if we’ve been looking at it the wrong way all along?
Professor Ritchie takes us inside the next frontier of brain science:
🧠Why amyloid plaques alone don’t define Alzheimer’s
đź§ How blood tests could transform early detection
đź§ Why memory clinics may already be outdated
đź§ The urgent shift from late-stage care to prevention
đź§ Why dementia should be understood as a spectrum, not one disease
đź§ How innovation outside hospitals could accelerate a cure
This conversation is filled with optimism, scientific honesty, and bold ideas that could redefine the future of brain health globally.
Whether you’re a healthcare professional, researcher, caregiver, policymaker, or simply someone worried about the future of dementia, this episode will leave you thinking differently about what’s possible.
Professor Craig Ritchie is a leading clinician and researcher at Scottish Brain Sciences, where he is pioneering new approaches to neurodegenerative disease, prevention, and early intervention.
🎙 Topics covered:
Alzheimer’s disease
Brain health
Dementia prevention
Blood biomarkers
Amyloid plaques
Early diagnosis
Precision medicine
Neurodegenerative disease
CTE and brain injury
Future of dementia care
If this conversation gives you hope, insight, or challenges your thinking, subscribe and share it with someone who needs to hear it.
#Alzheimers #BrainHealth #Dementia #Neuroscience #CraigRitchie #AlzheimersResearch #BrainHealthPodcast
In this powerful and emotional episode, I sit down with John Richard Pagan to discuss his journey living with younger-onset Lewy body dementia, navigating stigma, surviving healthcare trauma, and becoming a global advocate for people living with dementia.
John shares the devastating moment he received his dementia diagnosis over a telehealth call, the mental health struggles that followed, and how faith, community, and advocacy helped him rebuild his life.
This conversation goes beyond medicine and explores the real human experience of dementia, caregiving, diagnosis, mental health, LGBTQ+ identity, healthcare systems, and hope.
In this episode, we discuss:
đź§ Younger-onset dementia
đź§ Lewy body dementia symptoms and diagnosis
đź§ Mild cognitive impairment (MCI)
đź§ Dementia stigma in healthcare and society
đź§ Mental health after diagnosis
đź§ LGBTQ+ experiences in healthcare
đź§ Caregiving and support groups
đź§ Brain health advocacy
đź§ Living with dementia
đź§ The importance of patient voices in research
This episode is essential viewing for:
caregivers,
healthcare professionals,
researchers,
students,
advocates,
and anyone interested in brain health and dementia awareness.
If this conversation moved you, please:
👍 Like the video
đź’¬ Leave a comment
📢 Share with others
đź”” Subscribe for more conversations on dementia, brain health, caregiving, advocacy, and global health
#Dementia #LewyBodyDementia #YoungerOnsetDementia #BrainHealth #MentalHealth #Healthcare #Caregiving #DementiaAwareness #GlobalHealth #Neurology #MildCognitiveImpairment #Podcast
Delirium vs Dementia: Signs, Symptoms, Causes, and Prevention
Delirium is one of the most common yet underdiagnosed conditions affecting older adults—especially in hospitals. Often mistaken for dementia, delirium is a sudden and serious change in brain function that can lead to increased mortality, long-term cognitive decline, and higher healthcare costs if missed.
In this episode, psychiatrist Dr. John-Paul Omujune breaks down the critical differences between delirium and dementia, including symptoms, causes, risk factors, and why accurate diagnosis matters. We explore how delirium presents as sudden confusion, inattention, and fluctuating mental status—often triggered by infections, medications, or acute illness.
You’ll learn how to recognize early warning signs of delirium in elderly patients, practical strategies for prevention, and simple, non-pharmacological approaches to management. We also discuss the challenges of diagnosing delirium in low-resource settings and the urgent need for culturally appropriate screening tools and better healthcare training.
Whether you're a caregiver, healthcare professional, or interested in brain health and aging, this episode offers essential insights into improving patient outcomes and reducing preventable deaths.
Key topics:
delirium vs dementia, delirium symptoms, causes of confusion in elderly, hospital delirium, cognitive decline, brain health, geriatric care, delirium prevention, mental health in aging, global health
“I wasn’t ready for this.”
Eben thought he was just being a husband… until he became a full-time caregiver.
In this deeply honest conversation, he shares what it’s really like watching the person you love change because of Lewy Body Dementia—a complex condition linked to Parkinson’s that affects memory, behavior, and reality itself.
This episode isn’t clinical. It’s personal.
It’s about the quiet moments no one sees…
The exhaustion. The confusion. The guilt.
And the strength it takes to keep showing up anyway.
Eben opens up about:
This is more than a dementia story.
It’s about love under pressure. Identity. Loss. And resilience.
If you’re a caregiver, know someone living with dementia, or just want to understand what this journey really looks like—this episode will stay with you.
You’re not alone in this.!
What happens to consciousness when we die? Can the brain still be aware near the end of life? And why do some people with dementia suddenly become clear and lucid moments before death?
In this fascinating episode, Professor Loretta Norton explores the science and philosophy of consciousness, brain health, and death. We discuss groundbreaking research on paradoxical lucidity, near-death experiences, and the growing evidence that the brain may remain active in ways we are only beginning to understand.
This conversation dives into one of the biggest mysteries in neuroscience: how consciousness emerges from the brain—and what happens to it when life ends.
Professor Norton also explains why misdiagnosis of consciousness is common in critical care, how new technologies are helping doctors detect awareness in patients previously thought to be unconscious, and the profound ethical challenges families and clinicians face when making end-of-life decisions.
We also explore the emotional experiences of families navigating these moments and how understanding the biology of death could improve organ donation policies, medical ethics, and patient care.
This episode is essential listening for anyone interested in:
Brain health
Dementia research
Near-death experiences
Neuroscience of consciousness
End-of-life care
Medical ethics
Can tinnitus signal deeper changes in the brain?
In this episode, neuroscientist Dr. Anusha Mohan joins The Equity Podcast to explore the fascinating relationship between tinnitus, hearing loss, brain health, and dementia risk. Often described as ringing in the ears, tinnitus may actually reflect how the brain processes sound, stress, and sensory signals—offering new insights into neurological health.
Dr. Mohan shares her journey from biomedical engineering into neuroscience and explains the latest research on how the brain generates tinnitus. We also discuss how hearing loss and chronic stress can influence neural pathways associated with cognitive decline and neurodegenerative diseases such as Lewy body dementia and Alzheimer's disease.
This conversation highlights emerging research exploring how tinnitus might provide clues about brain function, perception, and early neurological changes.
In this episode, we explore:
• The neuroscience of tinnitus and how the brain processes sound
• The connection between hearing loss, stress, and dementia risk
• Key differences between Lewy body dementia and Alzheimer’s disease
• Early symptoms such as loss of smell, visual hallucinations, and sensory changes
• How patient involvement and lived experiences are shaping neuroscience research
• Practical ways young adults can build brain resilience and protect long-term cognitive health
Whether you're interested in brain health, dementia prevention, neuroscience research, or hearing health, this episode offers valuable insights into how the brain interprets signals and how lifestyle, environment, and research innovation can support cognitive well-being.
🎧 Subscribe to The Equity Podcast for weekly conversations on brain health, dementia equity, neuroscience, and global health innovation.
In this episode, I speak with Cyprian Mostert, a global brain health economist, about how funding decisions shape brain health and dementia outcomes, especially in developing countries.
We explore equity in global health, the gap between policy and implementation, and whether current brain health funding truly reflects dignity. We also discuss shifting from hospital-centric systems to community and household-based care, and the growing role of AI in health economics.
A timely conversation on funding, fairness, and the future of brain health.
If you're interested in brain health, dementia advocacy, global health policy, health equity, or the economics behind healthcare systems, this conversation is essential listening.
🎧 Listen now and join the conversation on reimagining health systems for dignity, equity, and impact.
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