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Patrick lives with ALS, and faces extraordinary challenges with simple, everyday tasks. But inside his head, a running internal monologue offers wry observations on life's absurdities during his most intimate moments. Through Patrick's uncensored thoughts, the film navigates the complexities of relationships in a world where his body no longer does what his brain says it should do. Balancing dark humor with raw honesty, it reveals an unfiltered perspective on living with ALS—one that's both heartbreaking and unexpectedly funny. Director Evan Mathis joins us for a conversation on working with his friend and colleague, Patrick Sean O’Brien, and the collaboration with a cadre of artist and friends to make this compelling and creative film.
About the filmmaker - Patrick Sean O'Brien is a fearless and relentlessly inspiring filmmaker who has transformed his battle with ALS into a quarter century long, raw, and unexpectedly life-affirming creative exploration, culminating in his acclaimed documentary TransFatty Lives. A film school graduate whose early work already showcased his boundary-pushing vision, Patrick refused to let complete paralysis silence him. Instead, he is still directing his deeply personal story capturing the humor, pain, and surprising beauty of his experience.
About the filmmaker - Evan Mathis is a three-time Emmy-winning director and creative whose work has been recognized by One Show,Clios, Promax BDA, and the Television Academy. He has served on judging panels for Promax BDA, The Television Academy, and SXSW Interactive, and his work has been featured in Adweek, Ad Age, Variety, and Sports Illustrated. Evan has spoken at design conferences worldwide and collaborates with leading companies across the globe.
By Mike KasparPatrick lives with ALS, and faces extraordinary challenges with simple, everyday tasks. But inside his head, a running internal monologue offers wry observations on life's absurdities during his most intimate moments. Through Patrick's uncensored thoughts, the film navigates the complexities of relationships in a world where his body no longer does what his brain says it should do. Balancing dark humor with raw honesty, it reveals an unfiltered perspective on living with ALS—one that's both heartbreaking and unexpectedly funny. Director Evan Mathis joins us for a conversation on working with his friend and colleague, Patrick Sean O’Brien, and the collaboration with a cadre of artist and friends to make this compelling and creative film.
About the filmmaker - Patrick Sean O'Brien is a fearless and relentlessly inspiring filmmaker who has transformed his battle with ALS into a quarter century long, raw, and unexpectedly life-affirming creative exploration, culminating in his acclaimed documentary TransFatty Lives. A film school graduate whose early work already showcased his boundary-pushing vision, Patrick refused to let complete paralysis silence him. Instead, he is still directing his deeply personal story capturing the humor, pain, and surprising beauty of his experience.
About the filmmaker - Evan Mathis is a three-time Emmy-winning director and creative whose work has been recognized by One Show,Clios, Promax BDA, and the Television Academy. He has served on judging panels for Promax BDA, The Television Academy, and SXSW Interactive, and his work has been featured in Adweek, Ad Age, Variety, and Sports Illustrated. Evan has spoken at design conferences worldwide and collaborates with leading companies across the globe.