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Today we talk with Claire about her son Elliott. Elliott was diagnosed with a rare condition that effects the gene KCNQ2. This mutation results in epilepsy that can start just hours after birth. She takes us on their journey, how they have handled the diagnosis and others he has received as he has aged. Claire has since wrote a book to help other families dealing with KCNQ2 and epilepsy. This story is one you can't miss!
To purchase Claire's book, just clink the link below!
https://www.amazon.com/Letter-powerful-resilience-Learning-epilepsy-ebook/dp/B0B24KK2RZ
By How to Deal When the Shit Gets Real4.3
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Today we talk with Claire about her son Elliott. Elliott was diagnosed with a rare condition that effects the gene KCNQ2. This mutation results in epilepsy that can start just hours after birth. She takes us on their journey, how they have handled the diagnosis and others he has received as he has aged. Claire has since wrote a book to help other families dealing with KCNQ2 and epilepsy. This story is one you can't miss!
To purchase Claire's book, just clink the link below!
https://www.amazon.com/Letter-powerful-resilience-Learning-epilepsy-ebook/dp/B0B24KK2RZ