I have been privileged to have crossed paths with an inspiring young man with a golden heart. Ethan Fergon is a strong and passionate young man who is an active advocate for rare and chronic health conditions. Ethan had found his purpose and started utilizing social media to share his empowering story about Goldenhar syndrome, connect with others, share other people's inspiring stories, and empower others. 

Goldenhar syndrome is a rare congenital condition that causes congenital disabilities in newborns. Ethan was born with cleft and lip palate, severe abnormal curvature of the spine known as scoliosis, and was born with part of his jaw missing. Because he couldn't move his jaw, Ethan had difficulties eating and talking, leaving him with years of hospital trips for surgeries. His condition also made it difficult for him to participate in school activities, making him the perfect target for bullies, but Ethan refused to let struggles in life defeat him. 

Ethan, as a baby, was a warrior then and is a warrior now, not only for himself but also for many others. Ethan uses his struggles and battles in life to inspire other people by sharing his remarkable story. Learn more about Ethan and Goldenhar syndrome by visiting his Instagram page @https://www.Instagram.com/g0ldenhart/

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