The Caregiving Soul

The Mighty: How a Rare Disease Inspired a Powerful Digital Community


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At the age of two, Mike and Sarah Porath’s oldest child, Annabel, was diagnosed with Dup15Q syndrome, a rare disease with symptoms including motor delays, varying levels of autism spectrum disorder, and epilepsy. Through relating with other parents who had children with the same disease, they began to feel supported and less alone. As they continued hearing these parents’ stories Mike and Sarah began to develop the idea of a platform that would allow others to connect around any health issue, which became the launchpad for The Mighty, an online health community of more than 4 million users sharing over 50.000 personal health stories.

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The Caregiving SoulBy Empowered Us

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