Rare Lives

The pandemic unravels India’s weak disability support system


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Persons with disabilities make up over 2 percent of the Indian population. While not all persons with disabilities are rare individuals, rare diseases are chronic and can lead to major disability. Both – rare individuals and persons with disabilities – have needs that are different from the larger population. 

From lifesaving medicines not reaching people due to the country-wide lockdown to lack of proper knowledge on how they can prevent the Coronavirus infection, this episode features difficult experiences. It focuses on the interview of Smitha Sadasivan, a disability rights advocate and a person with a rare illness called Multiple Sclerosis. She talks about the Indian public system proving fragile in the pandemic, and the consequent impact of this on rare individuals.

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Rare LivesBy Suno India


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