Caregiving isn’t just about caring for older parents. In this conversation, Juston White talks about the steps he took to advocate for his sister’s care when she developed rapidly progressive multiple sclerosis – including becoming her legal guardian. He reflects on the challenges of guardianship and the importance of giving his sister a voice in her care decisions.

Key Takeaway: advocacy often includes addressing more than medical needs

·     Establish a relationship with the hospital or health systems case managers and social workers.

·     Expand your own definition of advocacy. Legal and financial advocacy can unlock additional benefits.

·     Be open to guardianship. While it is a last resort, guardianship may be the best option when advocating for someone with a serious or catastrophic

illness.

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