In 2019, Katy Martins welcomed her fourth child, a son named Xavier. Shortly after his birth, Xavier was diagnosed with Apert Syndrome—a rare genetic condition that affects approximately 1 in every 65,000 to 88,000 live births. Today, Katy sits down with Tahnee to share their family’s journey. Tune in as we explore what Apert Syndrome is, how it affects those who live with it, and the strength and resilience behind their story.

https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/apert-syndrome/

www.katymartinsyoga. com

insta: katy.martins77

facebook: katymartinsyoga

In this episode, we dive deep into the world of ADHD with the brilliant Connor Greene, an ADHD Behavioural Specialist, parenting coach, and the voice behind ADHD & ODD Parent Coaching. Whether you're a parent, educator, or navigating ADHD yourself, Connor offers practical insights, empathy, and evidence-based strategies to help you better understand and support the ADHD brain.

Connor shares real-life stories and actionable tips to reduce daily chaos, communicate effectively, and build stronger relationships with your child.

📚 Resources Mentioned:

• Visit Connor’s coaching site: adhdandoddparentcoaching.com
• Follow on social for tips, strategies & support: @connormgreeneadhd
• Connor’s book: ADHD Explained https://www.connormgreene.com/books

🧠 Whether you're feeling overwhelmed or just curious, this episode is packed with empowering content to help you feel seen, heard, and supported on your ADHD journey.

🎤 ADHD - Master Skylander

🎤 Bring Me the Horizon - Avalanche

Educational consultant Carly Steel is back, bringing her wealth of experience and expertise! She is the author of Consulting Autistic Young People on Their Personal Happiness, published in the Good Autism Practice journal. Carly began her career as a teacher at a specialist college, where she supported autistic young people, and later completed a master’s degree in autism. She then went on to coordinate alternative provisions for a major charity across the East Midlands and London.

Carly’s true passion was discovered in her role as Director and Head of Education at an outdoor alternative provision, where she was able to make a direct impact on the lives of autistic individuals. As an autistic individual herself, Carly brings a unique, firsthand perspective to her work, offering invaluable insights into understanding and supporting the autistic experience.

Note to listeners: Tahnee would like to clarify that it wasn’t until after her conversation with Carly that she realised the autistic community prefers the term "autistic people" rather than "individuals with autism." We are all continuously learning and growing in our understanding.

https://embrace-autism.com/cat-q/

https://carly-steel.com/home

In this episode, we delve into cerebral palsy, a neurological condition that affects movement and muscle coordination. Tahnee is joined by Neil and his wife, Mary Harris, to discuss the causes, symptoms, and various treatment options, including physical therapy and surgery. Tune in to gain valuable insights into how cerebral palsy impacts individuals and their families, and why self-care is essential to prevent burnout. Discover how early intervention can significantly enhance outcomes and improve quality of life for children affected by the condition.

For Neil, self-care meant riding his motorbike. This passion led him to write HondaBoy, a deeply personal family story that connects two seemingly unrelated topics: the thrill of motorcycling and the survivor’s guilt stemming from escaping a devastating family illness.

https://www.amazon.co.uk/HondaBoy-faced-existential-crisis-bike-ebook/dp/B0DMP9NCZF

https://www.cerebralpalsyguidance.com/cerebral-palsy/

https://www.nhs.uk/conditions/cerebral-palsy/symptoms/

https://shop.disabilityrightsuk.org/products/disability-rights-handbook-2025-2026

In this episode, Amelia Christie opens up about her journey as the mother of a child with both congenital heart disease and cerebral palsy. She shares the challenges and triumphs her family has experienced while navigating complex medical diagnoses, advocating for her son's health, and finding strength in the face of adversity. Through this conversation, listeners gain valuable insights into the realities of caring for a child with multiple health conditions, the importance of support systems, and the power of resilience.

https://www.jumpchildrenscharity.co.uk

https://www.clairehouse.org.uk

https://www.alderheycharity.org

In this episode, Tahnee speaks with Jon about Down syndrome, where he shares his personal experiences, challenges, and successes while providing a candid perspective on what life is like for his son living with the condition. Jon addresses common misconceptions and advocates for a more inclusive society.

https://downsyndromeuk.co.uk/

https://www.downs-syndrome.org.uk/

https://www.standoutsocks.co.uk/

https://www.shabang.org.uk/what-we-do/

https://chsf.org.uk/

In this episode, Tahnee is joined by Carly Steel, an Educational Consultant, who works closely with parents of neurodivergent children to enhance their child’s wellbeing, reduce anxiety, and promote family harmony. She is also the author of Consulting Autistic Young People on Their Personal Happiness, published in the Good Autism Practice journal.

In honor of Neurodiversity Celebration Week, today we explore the world of dyslexia—a prevalent learning difference that influences how individuals read, write, and process language. Dyslexia is much more than simply reversing letters; It brings unique challenges that can affect everything from academic achievement to self-esteem, but it is also a condition filled with strengths, creativity, and untapped potential. We’ll explore what dyslexia is, how it manifests, and why understanding it is key to supporting those who live with it. Join us as we unpack the myths and truths about dyslexia and highlight the importance of awareness and tailored support.

https://www.nessy.com/en-gb Free educational resources

https://www.neurodiversityweek.com/powerpoint-presentations Powerpoint presentations to look at with your children.

https://www.ipsea.org.uk/ - A leading charity to help you navigate the SEND system.

https://www.bdadyslexia.org.uk/ British Dyslexia Association

https://www.carly-steel.com/

Email [email protected] to recieve your FREE 60 Reasonable Adjustments for Neurodivergent Children in School!

Life can be incredibly demanding, particularly for parents of children with Special Educational Needs and Disabilities (SEND), who must balance numerous appointments and therapies. It often feels like we’re managing a variety of responsibilities at once, but it’s important to remember that it’s okay to let some things go in order to focus on becoming the best version of ourselves. In this episode, Tahnee speaks with Kelly Kearley, a SEND mother who transitioned from a career in event management in London to becoming a psychotherapeutic counsellor. Kelly founded Mind Over Matter Therapy to offer support, give back, and help others heal from similar experiences. Having walked in the shoes of others truly enhances her ability to offer meaningful guidance.

My website: www.mindovermattertherapy.co.uk

PTEN UK and Ireland Patient group: www.ptenuki.org

Positively Rare book: https://amzn.eu/d/hf9Irx4

In this episode today, Tahnee talks with Gabby Zeppieri, the only adult in the US to be diagnosed with Neutral Lipid Storage Disease Myopathy NLSD-M, a rare genetic condition, where fats (lipids) are stored abnormally in organs and tissues throughout the body. The accumulation of fats in muscle tissue leads to muscle weakness (myopathy).

One of the reasons why such a small number of patients have been identified is un-awareness or less information of the disease.

https://www.gabbyswonderfulworld.org/

With the half term holidays in full swing, Tahnee takes some time off to become full time chef, taxi driver, bottom wiper, kids entertainer, cleaner and story teller. In this episode, we meet Isaac (9) and Reeva (4), who both wanted to be a part of the show. What's it like to have a sibling with a disability? and how well do they know him? Let's compare answers!