On todays episode Ivan shares his unique journey in navigating and understanding the discovery of his daughter Naomi’s rare genetic condition SATB2 -associated syndrome and opens up about his struggles over the years of seeking and getting the info he needed which lead him and his wife to start a not for profit (SATB2 Gene foundation Australia) to help other families and share the knowledge they have gained over the years. For more information on SATB2- associated syndrome you can head to the website https://satb2.org.au