In Part 2 of our Medicaid waiver hearing recap, we read more direct quotes from the hearing transcript, including the moments that still do not make sense to us.

This episode picks up where our last one left off. After losing in court, we are going through the actual exchanges from the hearing, including testimony from medical providers, arguments made about Mila’s needs, and the way her disability, epilepsy, brain injury, and daily care were discussed.

Some parts are serious. Some parts are absurd. Some parts made us angry all over again.

This is the final chapter of this part of the story before we move forward to the next level.

We start out by doing what we always do, laughing as a form of comedic relief and trauma healing. We talk about:

• The state’s argument that Mila’s needs were behavioral or developmental
• Medical testimony about her brain injury, epilepsy, and ongoing care needs
• The claim that she “didn’t want to walk”
• Why supervision and hands-on care matter when a child is medically fragile
• What it felt like to put our daughter’s doctors on the stand
• Why we are still fighting

This is not legal advice or medical advice. This is our family’s experience, told in real time, with direct quotes from the hearing and our honest reactions as Mila’s parents.

If you missed Part 1, watch it here: https://youtu.be/SNfBZO1XdQE?si=l_A6CBlqW76hSpEw

If you are parenting through stress, disability, medical uncertainty, or just trying to hold your family together while life keeps coming at you, this episode is for you.

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Resurface is the only podcast where two medical trauma survivors, each of us carrying invisible after effects, parent a medically complex child and special needs child together, disagree about many things, almost fall apart, and still choose to love each other through the storm. And try to make you laugh while we do it. We are not a recovery story. We are a survival story. The wave hasn't passed. We're still in it.