Major Pain

The Testing Is Not Definitive – Cassie’s Pain Journey


Listen Later

Cassie sums up her chronic pain situation by saying, "we know there's something wrong but we can't put a name to it because the testing is not definitive." She experiences chronic joint pain, chronic fatigue, brain fog and arthritic damage with no evidence of inflammation on her imaging. Doctors have ranged from confused to outright dismissive, but Cassie continues to fight for care.
Cassie's health problems started after getting COVID in December of 2021. Her infection was severe, taking 6 months to recover full lung capacity. She started experiencing strange GI symptoms and new food allergies, and almost exactly a year after her initial infection her hands started swelling. Cassie's chronic pain has been present ever since. The current theory is that she has rheumatoid arthritis, but she suspects there is more to the story.
In this episode of the Major Pain podcast, Cassie talks through her mysterious pain journey. Although most of her test results have been unclear, one test that came back with a definitive clear answer was a skin biopsy for small fiber neuropathy. Although Cassie felt validated by the positive SFN test, there are still questions as to what underlying condition is causing her nerve damage. Even though Cassie's life has been frustratingly altered by her chronic illness, there have been a few positive things to come out of it. It has brought her closer to her family, and proven her ability to advocate for herself.
Major Pain is now on Facebook! Follow our new page to share your thoughts on our latest episodes and stay up to date with our growing community. https://www.facebook.com/majorpainpodcast
The new bonus episode for our Patreon community is now available here!
...more
View all episodesView all episodes
Download on the App Store

Major PainBy Jesse Mercury

  • 4.8
  • 4.8
  • 4.8
  • 4.8
  • 4.8

4.8

46 ratings


More shows like Major Pain

View all
Wait Wait... Don't Tell Me! by NPR

Wait Wait... Don't Tell Me!

38,598 Listeners

Power Health Talk with Dr. Martin Rutherford by Dr. Martin Rutherford, DC : Functional Medicine Practitioner

Power Health Talk with Dr. Martin Rutherford

42 Listeners

The Daily by The New York Times

The Daily

111,088 Listeners

Uncover by CBC

Uncover

9,797 Listeners

Healio Rheuminations by Adam J. Brown, MD

Healio Rheuminations

120 Listeners

Dateline NBC by NBC News

Dateline NBC

47,506 Listeners

ANA Investigates by American Neurological Association

ANA Investigates

9 Listeners

Deep Cover by Pushkin Industries

Deep Cover

4,379 Listeners

SmartLess by Jason Bateman, Sean Hayes, Will Arnett

SmartLess

57,637 Listeners