Disability and Faith

The Unapologetic Advocate & Caregiver


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In this episode, Christine Boyle shares a raw and emotional recount of her recent experience with a case manager from the Ohio Department of Medicaid. The episode details an incident during her son's annual Medicaid Waiver assessment that turned adversarial, highlighting the systemic challenges caregivers face. Christine delves into her 25-year journey as a caregiver, the importance of advocacy, and the brokenness in the system that caregivers must navigate. She reflects on how her faith drives her advocacy efforts and encourages other caregivers to stand firm in their God-given roles, despite the challenges and misunderstandings they may face.

00:00 Introduction and Episode Overview

00:25 The Incident and Initial Reactions

01:37 Medicaid Waiver Program Challenges

02:45 Case Manager Communication Issues

06:22 The Emotional Toll of Caregiving

08:07 Advocacy and Systemic Issues

27:05 Personal Reflections and Faith

32:03 Embracing Misunderstandings with Grace

33:24 Living for God and Honoring Our Kids

34:00 The Spiritual Significance of Caregiving

36:27 Standing Firm in Advocacy

37:57 Facing Adversity with Faith

38:48 The Struggles of Navigating the System

42:00 A Personal Story of Advocacy

53:15 The Importance of Strong Advocacy

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Disability and FaithBy Christine Boyle

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