theMSguide podcast

theMSguide podcast

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theMSguide podcast episodes

  • Testing the use of AI in MRI for MS

    The use of Artificial Intelligence to help in medicine is a massive topic in Multiple Sclerosis. Hear how AI is making the interpretation of MRI faster, more accurate, and more thorough. Time after Time.


    Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


    https://www.patreon.com/theMSguide


    theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


    After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


    Email: [email protected]

    Twitter: @theMSguide

    LinkedIn: https://www.linkedin.com/company/themsguide/

    Instagram: @theMSguide

    Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

    Hosted on Acast. See acast.com/privacy for more information.

    23 min
  • Another New AI Tool That Will Transform Your MS Care

    All the promised trial details are here:


    Boston, US

    Brigham and Women's Hospital

    Principal Investigator: Tanuja Chitnis, MD

    [email protected]


    Ottawa, Canada

    The Ottawa Hospital

    Principal Investigator: Gauruv Bose, MD

    [email protected]


    London, UK

    The Royal London Hospital

    Principal Investigator: Sharmilee Gnanapavan, Dr.

    [email protected]


    Inclusion criteria:


    Participants must have a diagnosis of Multiple Sclerosis (MS) within an age range of 18 to 60.

    The participant must have an Extended Disability Status Scale (EDSS) score at screening less than or equal to 6.5, inclusive.

    As background, the main study is 6 months in duration, with an option for the participant to continue for an additional 6 months.


    For reference, here is a public link where we publish info on the MS study, including site contact info:


    https://clinicaltrials.gov/study/NCT05781113?term=NCT05781113&city=&rank=1


    Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


    https://www.patreon.com/theMSguide


    theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


    After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


    Email: [email protected]

    Twitter: @theMSguide

    LinkedIn: https://www.linkedin.com/company/themsguide/

    Instagram: @theMSguide

    Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

    Hosted on Acast. See acast.com/privacy for more information.

    33 min
  • Sex in MS : the things you need to know from Dr Brown

    ex is a fundamental human desire and pleasure but MS can really spoil things for us. In this first of this two-part episode we discuss the top 3 issues identified in research then in the second episode Dr Brown discusses ways to manage and overcome these difficulties.


    Here are the promised resources we discussed.


    https://mstrust.org.uk/a-z/sexual-problems-women-ms


    https://mstrust.org.uk/a-z/sexual-problems-men-ms


    https://www.mssociety.org.uk/about-ms/signs-and-symptoms/sex-and-relationships


    https://www.smsna.org/patients/did-you-know/what-is-sensate-focus-and-how-does-it-work


    https://cogbtherapy.com/cbt-blog/cognitive-defusion-techniques-and-exercises


    https://www.thecouplesummit.org/blog/relationship-check-ins


    https://www.gottman.com/blog/category/column/the-four-horsemen/


    https://www.gottman.com/blog/category/love-relationships/


    Dr Brown has also given me several guides that I can share with you. These cover questions for discussion, sensate focus therapy, and thought defusion (the correct spelling apparently!) strategies.


    Just email me at [email protected]


    Dr Ashley Brown, PhD, C. Psychol., FHEA - Teaching Fellow; Post-Doctoral Researcher - Health Psychology Section (IoPPN) - King’s College London


    Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


    https://www.patreon.com/theMSguide


    theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


    After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


    Email: [email protected]

    Twitter: @theMSguide

    LinkedIn: https://www.linkedin.com/company/themsguide/

    Instagram: @theMSguide

    Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

    Hosted on Acast. See acast.com/privacy for more information.

    27 min
  • Sex in MS : the things you need to know from Dr Brown

    Sex is a fundamental human desire and pleasure but MS can really spoil things for us. In this first of this two-part episode we discuss the top 3 issues identified in research then in the second episode Dr Brown discusses ways to manage and overcome these difficulties.


    Here are the promised resources we discussed.


    https://mstrust.org.uk/a-z/sexual-problems-women-ms


    https://mstrust.org.uk/a-z/sexual-problems-men-ms


    https://www.mssociety.org.uk/about-ms/signs-and-symptoms/sex-and-relationships


    https://www.smsna.org/patients/did-you-know/what-is-sensate-focus-and-how-does-it-work


    https://cogbtherapy.com/cbt-blog/cognitive-defusion-techniques-and-exercises


    https://www.thecouplesummit.org/blog/relationship-check-ins


    https://www.gottman.com/blog/category/column/the-four-horsemen/


    https://www.gottman.com/blog/category/love-relationships/


    Dr Brown has also given me several guides that I can share with you. These cover questions for discussion, sensate focus therapy, and thought defusion (the correct spelling apparently!) strategies.


    Just email me at [email protected]


    Dr Ashley Brown, PhD, C. Psychol., FHEA - Teaching Fellow; Post-Doctoral Researcher - Health Psychology Section (IoPPN) - King’s College London


    Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


    https://www.patreon.com/theMSguide


    theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


    After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


    Email: [email protected]

    Twitter: @theMSguide

    LinkedIn: https://www.linkedin.com/company/themsguide/

    Instagram: @theMSguide

    Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

    Hosted on Acast. See acast.com/privacy for more information.

    19 min
  • Digital and Social changed the MS world. Meet the man behind it and hear his incredible story.

    If you haven't become part of the Shift MS community then go to www.shift.ms to explore an incredible array of resources.


    If you are in London then the best lamb chops are at Tayyabs in East London near the Royal London Hospital. www.tayyabs.co.uk


    Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


    https://www.patreon.com/theMSguide


    theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


    After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


    Email: [email protected]

    Twitter: @theMSguide

    LinkedIn: https://www.linkedin.com/company/themsguide/

    Instagram: @theMSguide

    Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

    Hosted on Acast. See acast.com/privacy for more information.

    36 min
  • Men get better MS treatment than women.

    Join us to learn more as Professor Vicky Leavitt of Columbia University joins me and Scottie to talk us through her latest paper. We discover that it raises more questions than it answers.


    Learn more about Vicky here:


    https://mr.research.columbia.edu/content/victoria-m-leavitt


    and delve into her vast amount of research here:


    https://scholar.google.com/citations?user=D8B_Oq8AAAAJ&hl=en


    If you'd like a copy of the paper please email me asking for it. [email protected]


    Please Subscribe to the podcast or the YouTube channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


    https://www.patreon.com/theMSguide


    theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


    After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


    Email: [email protected]

    Twitter: @theMSguide

    LinkedIn: https://www.linkedin.com/company/themsguide/

    Instagram: @theMSguide

    Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

    Hosted on Acast. See acast.com/privacy for more information.

    35 min
  • Joe Bush is running the London Marathon and Raising £££ for MS Research

    Joe is an incredible young man who is taking his passion for running and using it to help support MS Research via the MS Society. I was put in touch with him as he is the son of the best friend of a pal of mine.


    Please help support his efforts by donating through his Just Giving page here: https://justgiving.com/page/joebush


    Follow Joe on Twitter/X here: @joebushy1 - https://twitter.com/joebushy1


    Read more about the research support from the MS Society here: https://www.mssociety.org.uk/research


    Read more about the London Marathon here: https://www.tcslondonmarathon.com/

    Hosted on Acast. See acast.com/privacy for more information.

    6 min
  • The Amazing MS Charity That Few People Have Heard Of MS-UK

    Please check out the incredible resources at https://ms-uk.org


    Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


    https://www.patreon.com/theMSguide


    theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


    After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


    Email: [email protected]

    Twitter: @theMSguide

    LinkedIn: https://www.linkedin.com/company/themsguide/

    Instagram: @theMSguide

    Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

    Hosted on Acast. See acast.com/privacy for more information.

    22 min
  • How patients benefit when their Neurologist/Nurse attends medical conferences

    Have you ever wondered what your doctor does when they flit off to exotic (and not so exotic) locations for medical conferences? They are important and you can benefit tremendously from having a doctor who works hard to stay up to date with the latest ideas in the field.


    Ask your doctor what the last conference they attended was and what they learned that affected your treatment and why.


    Contrary to what some thing it isn't a ski/Beach trip funded by the drug manufacturers. Really, the rules on pharma are extremely restrictive these days and rightly so.


    Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


    https://www.patreon.com/theMSguide


    theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


    After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


    Email: [email protected]

    Twitter: @theMSguide

    LinkedIn: https://www.linkedin.com/company/themsguide/

    Instagram: @theMSguide

    Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)


    CONy. ECTRIMS, Beyond the Limits, MS Society Research Conference, MS Trust Professionals,

    Hosted on Acast. See acast.com/privacy for more information.

    21 min
  • Changing your Neurologist is easier than you may think - your referral rights in the NHS - how to go about it

    This podcast deals with changing your neurologist (in the UK) but also has a ton of good tips that are generally useful. Wendy is a senior manager in the NHS (we can't say where!) and really understands the system.


    Since recording this episode Wendy has been to see her new neurologist and has been bowled over by how good a good MS neurologist can be. We'll follow-up soon.


    An NHS leaflet detailing your right to choose: https://www.england.nhs.uk/wp-content/uploads/2017/03/patient-leaflet-digital.pdf


    www.nhs.uk/patientchoice


    Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


    https://www.patreon.com/theMSguide


    theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


    After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


    Email: [email protected]

    Twitter: @theMSguide

    LinkedIn: https://www.linkedin.com/company/themsguide/

    Instagram: @theMSguide

    Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

    Hosted on Acast. See acast.com/privacy for more information.

    35 min

About theMSguide podcast

From the publisher's feed

This is a podcast where an expert MS patient of 31y (and counting) with the disease talks all things Multiple Sclerosis from a patient perspective. Keeping other patients informed and up to date on…