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Summary
In this heartfelt conversation, Jonathan Cottor shares his journey as a father to Ryan, who lived with spinal muscular atrophy (SMA). After facing the challenges of caring for a child with complex medical needs, Jonathan and his wife Holly founded Ryan's House, a respite and hospice care facility for children and their families.
Jonathan discusses the emotional and practical challenges they faced, the importance of community support, and the need for systemic change in pediatric palliative care. He emphasizes the significance of advocacy and the ongoing mission to improve support for families dealing with similar situations.
For Families | Ryan House
Support the show
Charity: Baby2Baby is a national non-profit organization that provides children living in poverty with diapers, clothing and all the basic necessities that every child deserves. To learn more and get involved, visit www.baby2baby.org
By Bonnie Lippincott, aka an entry level momSend a text
Summary
In this heartfelt conversation, Jonathan Cottor shares his journey as a father to Ryan, who lived with spinal muscular atrophy (SMA). After facing the challenges of caring for a child with complex medical needs, Jonathan and his wife Holly founded Ryan's House, a respite and hospice care facility for children and their families.
Jonathan discusses the emotional and practical challenges they faced, the importance of community support, and the need for systemic change in pediatric palliative care. He emphasizes the significance of advocacy and the ongoing mission to improve support for families dealing with similar situations.
For Families | Ryan House
Support the show
Charity: Baby2Baby is a national non-profit organization that provides children living in poverty with diapers, clothing and all the basic necessities that every child deserves. To learn more and get involved, visit www.baby2baby.org