The Bowel Chronicles

Thriving Beyond the Odds: A Journey with CIPO and EDS


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Join us in this inspiring episode as we delve into the courageous journey of Nienke a 37-year-old woman from the Netherlands who has battled with bowel issues her entire life.


 In 2018, her condition reached a critical point, leading to two tubes, a central line, and ultimately, ileostomy surgery. Diagnosed with CIPO (chronic intestinal pseudo-obstruction) compounded by hEDS (Ehlers-Danlos syndrome), she faced challenges such as oesophageal dysmotility, gastro paresis, and intestinal failure.


Despite the hurdles, she's discovered a new sense of resilience and adaptability, embracing a healthy mindset to navigate her new reality. From riding her beloved horses to planning holidays with friends, she's determined not to let her condition define her. 


With a focus on reclaiming normalcy, her journey is a testament to the power of perseverance and the human spirit. Tune in as we explore her inspiring story of triumph and hope, and discover the secrets to living a fulfilling life beyond the confines of chronic illness.


Guest: Nienke Wildschut


Instagram : https://www.instagram.com/nienke1208?igsh=emdudzFzdXpkMXA4


Tiktok: https://www.tiktok.com/@nienke1208?_t=8mLNThQZY2r&_r=1


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The Bowel ChroniclesBy Nicky Kilpatrick