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Tips for Thriving with cGVHD with Licensed Social Worker Jennifer Gillette
• Thriving to find the best version of you after transplant
• Find ways to reconnect with the world around you
• It is not easy: it can be a slow process, your personal earthquake
• Increased tolerance for the unknown
• Exhaustion
• Losses along the way
• Patience is important: a marathon not a sprint
• Look for ways to be even just a little bit stronger each day
• Energy issues
• Chemotherapy
• Your support system
• Emotional aspects including depression
• Fatigue examined: what time of the day is best for you and your energy level.
• Chemo brain: make lists, etc.
• Delegate
• Exercise, diet, nutrition and vitamins
• Light Therapy/Fatigue: Click here for our program on Fatigue
• Reprioritize your day
• Avoid naps if possible
• Caffeine tips
• You can control how you handle what is affecting you.
• Focus on the positive
•You are a blessing to so many
• Mark your progress: healing is happening
• Reclaim what you can
• Have a life list and/or a gratitude list and keep adding to the list
• Express yourself, communicate: Caringbridge.org
• Get out of the house when you can
• Find your passion
• Lunch & Learns: Click here for relevant topics!
• Caregivers Thriving: Secondary Survivors: Click here for our book on caregiving.
• Use “I” Statements
• Treat yourself good!
• Persistence, patience and hope. You got this!
National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.
nbmtLINK Website: https://www.nbmtlink.org/
nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINK
Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/
The nbmtLINK YouTube Page can be found by clicking here.
To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd
This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.
The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.
Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
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By The National Bone Marrow Transplant Link
4.8
99 ratings
• Thriving to find the best version of you after transplant
• Find ways to reconnect with the world around you
• It is not easy: it can be a slow process, your personal earthquake
• Increased tolerance for the unknown
• Exhaustion
• Losses along the way
• Patience is important: a marathon not a sprint
• Look for ways to be even just a little bit stronger each day
• Energy issues
• Chemotherapy
• Your support system
• Emotional aspects including depression
• Fatigue examined: what time of the day is best for you and your energy level.
• Chemo brain: make lists, etc.
• Delegate
• Exercise, diet, nutrition and vitamins
• Light Therapy/Fatigue: Click here for our program on Fatigue
• Reprioritize your day
• Avoid naps if possible
• Caffeine tips
• You can control how you handle what is affecting you.
• Focus on the positive
•You are a blessing to so many
• Mark your progress: healing is happening
• Reclaim what you can
• Have a life list and/or a gratitude list and keep adding to the list
• Express yourself, communicate: Caringbridge.org
• Get out of the house when you can
• Find your passion
• Lunch & Learns: Click here for relevant topics!
• Caregivers Thriving: Secondary Survivors: Click here for our book on caregiving.
• Use “I” Statements
• Treat yourself good!
• Persistence, patience and hope. You got this!
National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.
nbmtLINK Website: https://www.nbmtlink.org/
nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINK
Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/
The nbmtLINK YouTube Page can be found by clicking here.
To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd
This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.
The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.
Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.