Beyond the Disability

TJ and Tremmel on Living with Cystic Fibrosis


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In today’s Episode, Janice Brown talks with an African American family with two sons who were born with Cystic Fibrosis. They share the story of learning their children had CF, and what life is like in a family with CF.

 

Conversation Highlights:

{01:32} Meet our guest

{04:25} The journey with Cystic Fibrosis

{15:18} Raising children with Cystic Fibrosis

{35:15} The six Ps. Pleasure – Purpose – Pride – Product – Practice - A Pearl of wisdom

 

Resources:

The Judkins CF Foundation link: https://fightcf.cff.org/site/TR;jsessionid=00000000.app202a?px=4935803&pg=personal&fr_id=9008&s_src=boundlessfundraising&s_subsrc=bfAphSmsPfMsg&NONCE_TOKEN=309693393B36D1780807CFBEEB062F5F   TJ's book: https://www.amazon.com/Boy-CF-Story-Acceptance-Endurance/dp/163308518X

 betterhealthandrehab.com

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Beyond the DisabilityBy Janice Brown

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