<p>Well, there are some good days and then there are some bad days here in rare diseases. Here is one amazing day!</p>

Well, there are some good days and then there are some bad days here in rare diseases. Here is one amazing day!

Today was a good day...

Join us for a one-hour rare disease community support group. Here we will discuss the topics that affect your daily life in rare diseases as well as special needs. Being a parent is hard but having a child in rare disease takes a special kind of person and the journey is filled with potholes along the way. The pathway may never be clear, but together we can navigate by supporting each other. 
P.S. we are not a glum lot!

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Mental Health

Join us for a one-hour rare disease community support group. Here we will discuss the topics that affect your daily life in rare diseases as well as special needs. Being a parent is hard but having a child in rare disease takes a special kind of person and the journey is filled with potholes along the way. The pathway may never be clear, but together we can navigate by supporting each other. P.S. we are not a glum lot!

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