This week on the show Simon and Andrew chat to the Honourable Dr Tony Buti MLA about his recent appearance at the Totally Lit festival in Fremantle, where he hosted a panel discussion on his book 'Alkira' written about his daughter with Cri-du-chat syndrome. The discussion delves into his personal experience as a father raising a child with Cri-du-chat, and the struggles Tony and his wife Mandy faced along the way.

Tony describes with great warmth and compassion the journey of heartbreak, resilience and joy; from discovering his daughter has this rare condition to the response & action taken by himself and his wife to ensure that their bright daughter has a fulfilling life. One of the aims of the book is to help challenge how we approach disability and move toward a more just and inclusive society for all.

We very much appreciated Tony coming in to talk with us; it was a moving and informative conversation.

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