Tiny Expeditions - A Podcast about Genetics, DNA and Inheritance

Turning Pain Into Purpose: Advocating for Families with Rett Syndrome


Listen Later

What happens when a rare disease diagnosis changes everything? When you're told your child will never walk, never talk. On this episode, we learn about Rett Syndrome and sit down with a parent who became his daughter’s fiercest champion and a patient advocate committed to giving these families hope. Join us for an inspiring conversation about finding strength, building community, and living life to the fullest.

To go behind the scenes and learn more about this episode, visit “Turning Pain Into Purpose: Advocating for Families with Rett Syndrome.”

Thanks for listening! We're now on YouTube- follow us here. To receive episode updates and bonus material, subscribe to our mailing list here.

...more
View all episodesView all episodes
Download on the App Store

Tiny Expeditions - A Podcast about Genetics, DNA and InheritanceBy HudsonAlpha Institute for Biotechnology

  • 5
  • 5
  • 5
  • 5
  • 5

5

20 ratings


More shows like Tiny Expeditions - A Podcast about Genetics, DNA and Inheritance

View all
Radiolab by WNYC Studios

Radiolab

43,928 Listeners