Two Disabled Dudes - Kyle Bryant and Sean Baumstark

When I became a part of the rare disease community after Ford was born, I didn't feel like I had any community at all. After Ford was born, I felt less connected to my friends and I sought out a new community through podcasts because hearing stories made me feel connected. Sean Baumstark and Kyle Bryant, the hosts of Two Disabled Dudes podcast, both have Friedreich’s ataxia (FA). They have been an impactful resource in my journey and I'm so excited they're joining me.

EPISODE HIGHLIGHTS

Can you tell us how you became friends and connected as podcasters?

What is FA?

Can you share the background of The Ataxian?

Sean, tell us about your organization, Determinence.

Kyle, tell us about your book, Shifting Into High Gear.

LINKS AND RESOURCES MENTIONED

The World’s Toughest Bike Race - Race Across America (RAAM)

https://www.raceacrossamerica.org/

Two Disabled Dudes podcast

https://twodisableddudes.com/

The Ataxian

http://theataxianmovie.com/

Determinence

https://determinence.com/

Shifting Into High Gear

https://kyleabryant.com/

TUNE INTO THE ONCE UPON A GENE PODCAST

Spotify

Apple Podcasts

Stitcher

Overcast

CONNECT WITH EFFIE PARKS

Website

https://effieparks.com/

Twitter

https://twitter.com/OnceUponAGene

Instagram

https://www.instagram.com/onceuponagene.podcast/?hl=en

Built Ford Tough Facebook Group

https://www.facebook.com/groups/1877643259173346/