In this episode of the podcast, we are joined by Abbie Jordan, a psychologist and researcher from Bath University, who has made significant contributions to the field of chronic pain research, particularly in paediatric settings. Abbie’s work is highly regarded for its originality and its close link to clinical practice, making it both impactful and relevant.

A key topic of discussion is diagnostic uncertainty, a situation where there is a lack of a clear diagnosis or explanation for pain, or where the provided diagnosis is not accepted by the patient or their family. Abbie explains the complexities of this issue, noting that it can cause significant anxiety for both clinicians and families. She highlights the importance of validating pain experiences and building trust with patients and their families, which is crucial for effective pain management.

Abbie also delves into the impact of diagnostic uncertainty on families, citing research that indicates it is relatively common, affecting about a third of young people and their parents. This uncertainty can lead to increased pain intensity, reduced quality of life, and greater interference in daily activities. She stresses the importance of involving parents in the diagnostic and treatment process, as their support is essential for effective pain management.

For clinicians, Abbie offers practical recommendations. These strategies can help build trust and reduce anxiety, which are critical for successful pain management.

For families, Abbie’s insights provide validation and support, emphasizing that feelings of uncertainty and anxiety are common and valid. She encourages families to communicate effectively with clinicians and advocate for their child's needs.

Looking to the future, Abbie suggests the need for more integrated research that involves clinicians, children, and parents in real clinical settings. She highlights the importance of studying diagnostic uncertainty in real-time consultations to better understand its impact and improve clinical practices

Overall, this podcast offers valuable perspectives on the challenges and opportunities in managing chronic pain in children. It is a must-listen for both clinicians seeking to enhance their understanding and improve their practice, and for families navigating the complexities of chronic pain.

Article discussed by Konrad:

Paladini, A., Barrientos Penaloza, J., Plancarte Sanchez, R., Ergönenç, T., & Varrassi, G. (2023). Bridging old and new in pain medicine: An historical review. Cureus, 15(8), e43639. https://doi.org/10.7759/cureus.43639

Authors:

Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.

Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Twitter: @konradjacobs

Contact

Please email Glyn and Konrad with comments and feedback: [email protected]

Follow Konrad on twitter: @konradjacobs

Podcast reference (APA style):

Jacobs, K. and Williams, G. (Hosts). (2024, January 8). What a Pain. (Season 2, Number 5) [Audio podcast episode].Understanding Diagnostic Uncertainty in Chronic Pain.

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