In this episode of Rare Together, we’re joined by two people affected by rare diseases on opposite sides of the globe: Jeannie, from Ontario Canada is living with one of the rarest, and newest, forms of Thyroid Cancer, and David, living in Sydney Australia, who is living with Stiff Person Syndrome. 

Join us in this insightful conversation as we hear how their different rare conditions affect their daily life. We chat about their shared experiences with medical professionals who couldn’t help them, the challenges of getting their families to understand what they’re going through, their difficult journeys to diagnosis and how they’re both helping shape the future of medicine and medical research in their own ways. 

Our host today as always is the wonderful Andrew Grant. Andrew is an experienced medical research consultant with LDA Research, an international medical market research organisation working in the pharmaceutical industry and medical device sector.

If you would like to share your story and help raise awareness of a rare condition you’re affected by, please apply to be part of the podcast here. Alternatively, join the conversation online by becoming a member of our private Facebook group, Rare Disease Network, where we’ve created a community of people from across the globe affected by rare diseases.

Audio: Spirit Blossom by Roman Belov