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We Have “Gifted” Enough: Dr Krystal Tsosie on Indigenous Genomic Data Sovereignty and Righting the Wrongs of Extractive Precision Medicine Research
Dr Krystal Tsosie made what she calls a “hail mary” pass when she and colleagues pushed the genomic science research community to recognize that collection of genomic information from Indigenous peoples may not have offered much benefit to the Indigenous groups who contributed DNA -- and instead perpetuated stereotypes and other harms. Today, Dr. Tsosie is doing groundbreaking work in the field of indigenous genomic data, indigenous data sovereignty, and bioethics, not only from a scientific research and technology standpoint, but when it comes to advocating for meaningful representation and inclusion of indigenous peoples to ensure their interests are protected. Hear Dr Tsosie’s story in this eye-opening inaugural episode of Privacy on the Ground.
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By World Privacy ForumDr Krystal Tsosie made what she calls a “hail mary” pass when she and colleagues pushed the genomic science research community to recognize that collection of genomic information from Indigenous peoples may not have offered much benefit to the Indigenous groups who contributed DNA -- and instead perpetuated stereotypes and other harms. Today, Dr. Tsosie is doing groundbreaking work in the field of indigenous genomic data, indigenous data sovereignty, and bioethics, not only from a scientific research and technology standpoint, but when it comes to advocating for meaningful representation and inclusion of indigenous peoples to ensure their interests are protected. Hear Dr Tsosie’s story in this eye-opening inaugural episode of Privacy on the Ground.