We explore how HR1, a prolonged shutdown, and agency reshuffles affect access, affordability, and safety for people with rare and chronic conditions. With Dane Christensen and Jim Romano, we translate the DC process into patient wins and outline how your story drives change.

• HR1’s budget mechanics and phase-in effects on healthcare
• Medicaid redeterminations and benefit generosity pressures
• Blood safety funding is maintained, but the advisory body is dormant
• Shutdown delays to bipartisan health bills and why it matters
• Premium tax credits, discharge petition, and likely compromise
• PBM reform judged by out-of-pocket costs, not headlines
• Insurer tactics on third-party aid and accumulators
• Patient choice in specialty pharmacy and continuity of care
• How to brief Congress with clear, factual stories
• 2026 priorities and steady, incremental advocacy

Join us for Hope on the Hill, June 10–11. Share your story or get involved: [email protected]. Learn more at hope-charities.org. 

Hope Charities is a national nonprofit focused on helping people living with rare and chronic illnesses thrive. Our programs specialize in helping people with genetic bleeding disorders and #hemophilia navigate the challenges of invisible disease by providing emotional, educational, and tangible support. To learn more about our programs, visit our website www.hope-charities.org.

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