Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote following a week of trying to manage new medications that weren’t helpful. Charlene felt frustrated and discouraged when her prescribed therapies weren’t relieving a sudden increase in shortness of breath and writes about where to turn when new medications aren’t effective.

Topping that list is connecting with other patients, which Charlene finds powerful and comforting; there is no greater source of information than from fellow rare disease patients.

As a patient living with IPF/PF: where do you turn when a newly prescribed medication isn’t helpful?

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