In Episode 7 of Whit’s Grit, host Whitney Lavender sits down with her dear friend and remarkable disability advocate Lauren Compere. A quadriplegic living with a rare genetic condition (one of only about 22 documented cases), Lauren opens up about her lifelong journey from an early cerebral palsy diagnosis through whole genome sequencing, the Undiagnosed Diseases Network, and a recent consultation with leading specialist Dr. Peter Kang at the University of Minnesota.
Lauren shares how symptoms and questions intensified in her late twenties and early thirties, the emotional weight of navigating the unknown, and how her deep faith in Jesus has been her anchor through it all. She discusses growing up feeling different, the challenges of school with changing caregivers, her drive to understand people (leading to a B.S. in Psychology from Mississippi College with a perfect 4.0 GPA and a recent Master of Arts in Counseling from Reformed Theological Seminary), and her transformative experience as Miss Wheelchair Mississippi 2015 and First Runner-up at Miss Wheelchair America.
Her platform — connecting families impacted by disability with the church and vital resources — continues to guide her work today as Secretary on the Ms. Wheelchair Mississippi Board. Lauren also reflects on what “grit” truly means to her: moving beyond white-knuckling through hardship to self-awareness, self-compassion, sustainable boundaries, and relying on God’s strength. She offers heartfelt advice for young girls navigating disability and reminds listeners that everyone is worthy of taking up space.
Timestamps:
[0:22] Welcome & introduction to Lauren Compere
[2:05] Lauren explains her rare genetic condition and lifelong diagnostic journey
[7:30] Recent trip to Dr. Peter Kang & insights on EMARDD / MEGF10 mutation
[10:40] Faith, suffering, grief, and finding hope in the unknown
[14:50] Growing up with disability: school experiences, identity, and healing
[21:20] Path to psychology & counseling; college life at Mississippi College
[24:30] Miss Wheelchair Mississippi 2015, Miss Wheelchair America experience & platform
[33:00] Current advocacy work and board involvement
[40:00] Advice for a young girl with a disability
[45:10] What “grit” really means to Lauren Compere
[50:00] How to connect with Lauren & closing encouragement
Lauren’s experience includes over 1,000 hours of clinical counseling (410+ direct service hours), roles as Development Director at One Shred of Hope Nonprofit and Vocational Coordinator at Son Valley, plus disability ministry training with Joni and Friends. She continues volunteering and mentoring while actively recruiting personal care assistants.
Follow Lauren on Instagram and Facebook @LaurenCompere
Visit her website: teamlc.net (for her story and personal care assistant opportunities)
Subscribe to Whit’s Grit on YouTube (@whitscomplex) and never miss an episode. New episodes drop every Wednesday.
It’s okay to ask “why.”
There is always hope — and grit — on the other side.