What happens when you're diagnosed with guaranteed cancer at eight years old?  
 

This week, Kim welcomes Jenny Jones, author and advocate living with familial adenomatous polyposis (FAP)—a hereditary colon cancer syndrome that guarantees colon removal at some point in life. Diagnosed at eight years old and having her colon removed at nine when polyps started turning cancerous, Jenny spent five years angry at everyone, developing medical PTSD from surgical complications that led to short bowel syndrome.  

 In this raw and educational episode, Jenny reveals:

• ​🔴 Brutal honesty: Genetic reality: 50-50 chance of inheriting FAP if parent has it. Colon removal is inevitable when polyps turn cancerous 
• ​🟢 Five years of anger: Medical PTSD and surgical complications led to hating everyone, parents, doctors, and herself, until therapy 
• ​🟣 Advocacy mission: Written children's book with mutant characters, pushing for earlier screening than current age 10-15 guidelines 

Chapters

00:00 Introduction to Chronic Truth Podcast
01:33 Understanding Familial Adenomatous Polyposis (FAP)
04:57 Growing Up with FAP: Personal Experiences
07:36 Daily Challenges of Living with Rare Diseases
10:59 Diet and Its Impact on Health
11:44 Advocacy Through Writing: Children's Books on FAP
15:04 Genetics and Inheritance of FAP
19:45 Future of Research and Advocacy for FAP
22:58 Diagnosis and Symptoms of FAP
28:09 Advice for Young Patients with FAP

Connect with Jenny:

💻 ⁠⁠Life's A Polyp
📚  Amazon: "Life's A Polyp"

To support the show, visit our ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Linktree⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

This episode is brought to you by:

The Chronic Truth Podcast, LLC

Host/Executive Producer: Kimberly Nash

 Podcast Creative Director  &  Co-Producer: Jay Wilson, for ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠The Podcast Mechanic⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠