Decentralized: The Decentralized Trials & Research Podcast

Why People Stay (Or Don't)/ Rethinking Participation in Modern Trials


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2025-11-14 - Hosts Amir Kalali and Jane Myles were joined by Alex Charge (ISPEP) and Stacey Davidson (Cuttsy+Cuttsy) on what today’s clinical trial participants experience from start to finish. Drawing on new research conducted by their organizations, the conversation unpacks how patients discover trials, why they join, and what drives both positive experiences and early dropout. Key themes include the importance of strong site support, clearer communication, caregiver involvement, and the operational challenges that trial sites face.

The group also explores broader issues in patient engagement—from protocol design and long-term communication gaps to the role AI could play in improving support and retention.

The Participation Equation: a webinar from Cuttsy+Cuttsy and ISPEP

  • Link to sign up for the webinar on 11/19 at 9:00 AM ET

The participation equation: Understanding what drives participant engagement in clinical trials

  • Link to access the report here

You can join TGIF-DTRA Sessions live on LinkedIn Live on Friday's at 12:00 PM ET by checking out our LinkedIn. Follow the Decentralized Trials & Research Alliance (DTRA) on LinkedIn and X. Learn more about Membership options and our work at www.dtra.org.

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Decentralized: The Decentralized Trials & Research PodcastBy Decentralized Trials & Research Alliance (DTRA)