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This episode is made up of your voices—listener-submitted advice, caregiving hacks, and the real-life tips that have helped you get through the days (and the nights). The small things, the practical things, the “why didn’t anyone tell me this sooner?” kind of things.
From navigating behaviors, to finding moments of relief, to the ways you’ve learned to care—for them and for yourself—this is wisdom that only comes from lived experience.
So whether you’re in it right now, or finding your footing on the other side, we hope something in here meets you where you are.
Thank you for showing up, for sharing, and for continuing to build this community with us.
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FIRST - THE LINKS MENTIONED IN TODAY'S EPISODE:
Searching for the Words Substack
Expert Chat: How To Advocate For A Loved One Living In A Care Facility with Laurette Klier.
Participate in our Ask A Genetic Counselor Episode
Support the show + unlock bonus content (including a bonus episode with Amy): Patreon → www.patreon.com/remembermecommunity
Today’s Sponsors — Progranulin Information Navigator Learn more about genetic testing, clinical trials, and FTD resources → www.progranulinnavigator.org
Psilera → Psilera is a biotechnology company developing next-generation neurotherapeutics .https://www.psilera.com
Follow along: Instagram → @remembermepodcast Website → www.remembermeftd.com
Our Non-Profit — The Remember Me Foundation www.remembermefoundation.org
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Remember Me Podcast + Community exists to offer hope, connection, and support for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
By Remember Me Podcast5
22 ratings
This episode is made up of your voices—listener-submitted advice, caregiving hacks, and the real-life tips that have helped you get through the days (and the nights). The small things, the practical things, the “why didn’t anyone tell me this sooner?” kind of things.
From navigating behaviors, to finding moments of relief, to the ways you’ve learned to care—for them and for yourself—this is wisdom that only comes from lived experience.
So whether you’re in it right now, or finding your footing on the other side, we hope something in here meets you where you are.
Thank you for showing up, for sharing, and for continuing to build this community with us.
---
FIRST - THE LINKS MENTIONED IN TODAY'S EPISODE:
Searching for the Words Substack
Expert Chat: How To Advocate For A Loved One Living In A Care Facility with Laurette Klier.
Participate in our Ask A Genetic Counselor Episode
Support the show + unlock bonus content (including a bonus episode with Amy): Patreon → www.patreon.com/remembermecommunity
Today’s Sponsors — Progranulin Information Navigator Learn more about genetic testing, clinical trials, and FTD resources → www.progranulinnavigator.org
Psilera → Psilera is a biotechnology company developing next-generation neurotherapeutics .https://www.psilera.com
Follow along: Instagram → @remembermepodcast Website → www.remembermeftd.com
Our Non-Profit — The Remember Me Foundation www.remembermefoundation.org
—
Remember Me Podcast + Community exists to offer hope, connection, and support for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

56,944 Listeners