With Mais and Mal

In this episode, Mal unpacks everything it took to move across the country to the east coast. From apartment hunting and car rentals, to dance classes and doctor appointments.  

Join us in welcoming 2024 with some chill vibes and setting our intentions with a vision board workshop!

Friday, February 16th

6:00 PM EST (now that we're in the same time zone!)

Come hang out on Zoom with us and think about what this year holds for you, or just work on a craft and chill. 

Register here!

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In this episode, Mais and Mal share their experiences traveling domestically and internationally.  They share their run ins with TSA and the constant plague of inaccessibility, and some helpful things they've learned along the way.  

If you want to chat with Mallory about how to make your bar, restaurant, hotel, or airline more accessible, check out her services on her website HERE

If you want to check out Maisy's Packing Spreadsheet, go HERE

@withmaisandmal

 @the_maisinator

@curbcutsncocktails

In this episode, listen as Mais and Mal slowly unravel while talking about the inconsistencies and lack of communication within the healthcare system, but also all of the cool stuff they're working on!

@withmaisandmal

 @the_maisinator

@curbcutsncocktails

Places to Donate:

Abortion Funds by State

Planned Parenthood

Maine Family Planning

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In this episode we will be talking about our individual experiences in graduate school and higher education in general, why we decided to go, what we learned, and was it worth it?!  We’ll also touch on how we found a balance between managing our health and navigating the more typical challenges that grad school presents.

@withmaisandmal

 @the_maisinator

@curbcutsncocktails

We know it's been a little while since our last podcast.  Here's what we've been up to in the meantime!

Thanks for your patience as we wrap up degrees, navigate new jobs, and try to find some semblance of normalcy in this wild world.

As always, find us on social media and let us know what you want to hear more about!

@withmaisandmal

       @the_maisinator

       @curbcutsncocktails

In this episode, Maisy shares her most recent healthcare endeavors while balancing work, school, and life, and Mal talks about hearing from providers at a recent conference. 

What advice would you give providers dealing with patients who have rare diseases? 

How do you balance your health and the other parts of your life?

@withmaisandmal

       @the_maisinator

       @curbcutsncocktails

We know it's been a little while since we've posted on here so we really appreciate your patience.  Part of what we talk about is balancing a rare disease with living a "normal" life and sometimes that means some things get put on the back burner.  But we're back! So thanks for sticking around. 

Hear all the things we've been up to and all the changes that we've brought into 2021, as well as some exciting opportunities we have coming up!

Register for the Global Gene Summit!

We'll be presenting Wednesday, 9/29 at 12:50 EST

And as always, follow us on social media and check out our new website for more updates!

@withmaisandmal

CW: Mention of mental health challenges & suicidal ideation

In this episode, we dig into the ways social media has helped and hindered the chronic illness & rare disease community, the ways in which we can seek support and the risk of getting caught up in the toxicity of social media as a whole.

We would love for this to be a dialogue of sorts so feel free to share your thoughts and opinions in the comments! This is definitely one of our heavier episodes thus far, so thank you for giving us the space to share our thoughts and our journey.

National Suicide Prevention Lifeline

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We got so many good questions for our mom before our last episode that we wanted another chance to answer some of them.  In this episode, we dig a little deeper in navigating the healthcare world as a new mom and as a family.  Our mom also talks about the incredible advocacy work she's done on behalf of families with children who have special health care needs.

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In this episode, we host our first guest: our mom!  She helps us answer some of your questions about our childhood and what it was like to raise two daughters with complex medical needs. It was a lot of fun reminiscing so we didn't get to every question, but she'll definitely be back for a part 2! Stay tuned!

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