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Our government drafts, debates, and approves laws that govern important areas of our amyloidosis community. These laws can impact things like funding for research, patient access to treatments, and cost relief for patients (e.g., co-pay relief). As we will hear in today’s discussion with Kathi Luis from the Amyloidosis Foundation, it is absolutely critical that the voice of our community is heard by our legislators so they are aware of our issues and can work to design and advance appropriate solutions. To our listeners, if this is something you would like to learn more about or get involved with, contact Kathi Luis at [email protected]. Please remember her words … you can make a difference! For an overview of amyloidosis, please see episode 2 (for clinicians) or episode 3 (for patients).
By Mackenzie's Mission5
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Send us a text
Our government drafts, debates, and approves laws that govern important areas of our amyloidosis community. These laws can impact things like funding for research, patient access to treatments, and cost relief for patients (e.g., co-pay relief). As we will hear in today’s discussion with Kathi Luis from the Amyloidosis Foundation, it is absolutely critical that the voice of our community is heard by our legislators so they are aware of our issues and can work to design and advance appropriate solutions. To our listeners, if this is something you would like to learn more about or get involved with, contact Kathi Luis at [email protected]. Please remember her words … you can make a difference! For an overview of amyloidosis, please see episode 2 (for clinicians) or episode 3 (for patients).

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