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Yearning for Normal Audiobook by Susan Ellison Busch
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Title: Yearning for Normal
Author: Susan Ellison Busch
Narrator: Susan Ellison Busch
Format: Unabridged
Length: 7 hrs and 47 mins
Language: English
Release date: 09-23-16
Publisher: Gray Horse Press
Genres: Bios & Memoirs, Personal Memoirs
Publisher's Summary:
This award-winning memoir tells a mother's story of raising her son Michael, who was born missing a submicroscopic piece of chromosome 22. That tiny missing fragment of DNA affected every aspect of his life physically, mentally, and spiritually. Michael's mother describes her adventures and misadventures with the medical system, educational system, and legal systems during his growing up years. She also describes her own internal struggles and wrestling matches with God. While Michael and his mother were both yearning for normal through their struggles, they were also learning acceptance and love.
Members Reviews:
Universal Appeal!
A thousand thanks to Susan for writing such a powerful and personal portrayal of living this trajectory, and to Mike for his courage in allowing his story to be told with such honesty. I too could not put it down. Very very well done!! It is so important to bring this syndrome to professional and public awareness, as it is frequently the âinvisible disabilityâ. To Susanâs excellent list of support websites, I would add for parents and especially teachers the http://dempsterfamilyfoundation.org/ website which stores many of the great CABIL videos, and the Friends of Quinn for kids 13 and older living with 22q and other learning differences: http://www.friendsofquinn.com/.
A mother's love is unconditional.
Sometimes life is not "typical". I have a daughter that was born with a deletion of chromosome 22q11.
The challenges this family experienced is very similar to our own. I know how difficult it was to put
the situations into words, but this author did it. Ellison BuschSusan spoke for many mothers who
battle to find the correct diagnosis, the special education and the help that our child deserves & needs.
Our stage of the syndrome is manageable, but the book opened my eyes to worries of the future.
However, the book gave me hope to say, "if this mom can do it, so can I". That is why I rated this book
5 stars.
Not for everyone, but cathartic for this 22Q mom
I could have written this book. At least the early chapters (my son hasn't hit adolescence yet).
Very few resources describe the spiritual struggles of this syndrome. Very few warn parents that it doesn't stop with the early childhood physical problems.
Can't express how helpful it is to learn that we are not alone. And to have a roadmap for the years to come.
Thank you for writing this, Ms BuschSusan. May God be with you and Mike and the rest of your family.
Recommended reading for 22q parents
As a mom of a young son who was diagnosed with 22q at 5 weeks old I found this book very enlightening. It gave an insight into the world of raising a child with this syndrome.
Very Insightful!
Thank you so much for being a voice for those affected by 22q.11.2 and their families. This is an insightful and honest glimpse of the realities of what not having a complete set of chromosomes 22 really looks like.
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Title: Yearning for Normal
Author: Susan Ellison Busch
Narrator: Susan Ellison Busch
Format: Unabridged
Length: 7 hrs and 47 mins
Language: English
Release date: 09-23-16
Publisher: Gray Horse Press
Genres: Bios & Memoirs, Personal Memoirs
Publisher's Summary:
This award-winning memoir tells a mother's story of raising her son Michael, who was born missing a submicroscopic piece of chromosome 22. That tiny missing fragment of DNA affected every aspect of his life physically, mentally, and spiritually. Michael's mother describes her adventures and misadventures with the medical system, educational system, and legal systems during his growing up years. She also describes her own internal struggles and wrestling matches with God. While Michael and his mother were both yearning for normal through their struggles, they were also learning acceptance and love.
Members Reviews:
Universal Appeal!
A thousand thanks to Susan for writing such a powerful and personal portrayal of living this trajectory, and to Mike for his courage in allowing his story to be told with such honesty. I too could not put it down. Very very well done!! It is so important to bring this syndrome to professional and public awareness, as it is frequently the âinvisible disabilityâ. To Susanâs excellent list of support websites, I would add for parents and especially teachers the http://dempsterfamilyfoundation.org/ website which stores many of the great CABIL videos, and the Friends of Quinn for kids 13 and older living with 22q and other learning differences: http://www.friendsofquinn.com/.
A mother's love is unconditional.
Sometimes life is not "typical". I have a daughter that was born with a deletion of chromosome 22q11.
The challenges this family experienced is very similar to our own. I know how difficult it was to put
the situations into words, but this author did it. Ellison BuschSusan spoke for many mothers who
battle to find the correct diagnosis, the special education and the help that our child deserves & needs.
Our stage of the syndrome is manageable, but the book opened my eyes to worries of the future.
However, the book gave me hope to say, "if this mom can do it, so can I". That is why I rated this book
5 stars.
Not for everyone, but cathartic for this 22Q mom
I could have written this book. At least the early chapters (my son hasn't hit adolescence yet).
Very few resources describe the spiritual struggles of this syndrome. Very few warn parents that it doesn't stop with the early childhood physical problems.
Can't express how helpful it is to learn that we are not alone. And to have a roadmap for the years to come.
Thank you for writing this, Ms BuschSusan. May God be with you and Mike and the rest of your family.
Recommended reading for 22q parents
As a mom of a young son who was diagnosed with 22q at 5 weeks old I found this book very enlightening. It gave an insight into the world of raising a child with this syndrome.
Very Insightful!
Thank you so much for being a voice for those affected by 22q.11.2 and their families. This is an insightful and honest glimpse of the realities of what not having a complete set of chromosomes 22 really looks like.