You, Me & Rare Disease ep. 2 of 2 acknowledging International Rare Disease Day 28th February

On You, Me & Rare Disease episode 2 of 2 we feature insights from Carly Findlay, OAM,  Clare Reilly and Leanne Watson.

Their personal experiences with rare diseases of LGMD, MS, Ichthyosis, and Cancer.

They emphasise the importance of awareness, community support, and the need for dedicated Rare Diseases Day to foster understanding and solidarity.

 GUEST LINKS

Carly Findlay

https://carlyfindlay.com.au/hire-me/

https://www.instagram.com/carlyfindlay/

Clare Reilly

https://www.wheelchairmeetswilderness.org

https://www.instagram.com/clare.reilly/

Leanne Watson

https://www.leanneSWHEellife.com

https://www.instagram.com/leannes_wheel_life/

 MUSIC

Music: Without You by Declan DP License: https://license.declandp.info Free Download / Stream: https://audiolibrary.com.co/declan-dp...Music promoted by Audio Library:    • DAILY No Copyright For You – Without You b...  

CHAPTERS

01:05 Introduction to Carly Findlay and Her Advocacy

06:11 Living with Ichthyosis: Challenges and Experiences

10:30 Navigating the Medical System with Rare Diseases

15:07 The Importance of Rare Diseases Day and Community Support

16:14 Introduction to Rare Diseases and MS

18:37 Understanding Multiple Sclerosis

21:18 Living with a Rare Disease

23:13 The Importance of Rare Diseases Day

23:47 Understanding Limb Girdle Muscular Dystrophy

29:22 The Impact of Living with a Rare Disease