"On my birthday, I ended up in the hospital, barely conscious. Doctors assumed I was drunk—but the truth was far more serious."

In this episode, MEN1 Patient, Kinga, shares:

🔹 The unexpected symptoms that led to her diagnosis
🔹 The biggest mistakes she made at the start
🔹 How she found support & learned to advocate for herself
🔹 What she wishes she knew back in 2019

If you or a loved one are navigating MEN1—or any rare condition—this episode is for you. 💛

📌 Join My MEN1 Community: https://lizziedunn.ck.page/jointhecommunity

⏳ Timestamps:
00:00 Intro
00:30 The night everything changed
04:15 Getting diagnosed with MEN1 Mosaicism
07:40 Learning to advocate for herself
10:55 Managing MEN1 across different countries
14:20 What she wishes she knew sooner
16:00 Advice for anyone facing a rare disease

Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click here

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.