Life with Long Covid

15: "if you could just fill in this form"


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The UK Government has recently once again made it clear that the national welfare benefit budget needs to shrink. What does it feel like for somebody with a chronic illness to apply?     I share my deeply personal and often frustrating journey through the maze of seeking validation and support for a condition that many misunderstand. You'll hear about the moments of despair, the exhaustive paperwork, and the sheer emotional toll it took to apply for Personal Independence Payment (PIP) in the UK. But there's also light at the end of the tunnel—I'll recount the sense of empowerment and relief when I was finally granted PIP and my blue badge, both of which have been a game-changer in making my daily life more manageable.

This episode also shines a spotlight on the unsung heroes at the Citizens Advice Bureau. Their invaluable guidance and encouragement played a pivotal role in my successful reapplication for PIP.  I'll also discuss the broader support systems, such as Employment Support Allowance and occupational health assessments, which have been essential in helping me feel validated in my daily struggles . My aim is to offer insight, solidarity, and a beacon of hope for anyone facing similar struggles, encouraging you to seek the support you rightly need and deserve.

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Life with Long CovidBy Paul Ian Clarke

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