The MEN1 Mosaic

#27 - MEN1 & The Fraudulent Feeling – What No One Talks About (Patient Advocate & NCUK Ambassador)


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Ever felt like a fraud when it comes to your health? Like you’re not “sick enough” to ask for help, or that others have it worse?

In this episode, I sit down with Simon, a MEN1 patient advocate and NCUK ambassador, to unpack "the fraudulent feeling"—the struggle of living with an invisible illness while looking "fine" on the outside. 

We discuss: 
- How Simon went from a **diagnosis with no symptoms** to facing major health challenges 
- Navigating work, medical retirement, and the importance of self-advocacy 
- The **emotional toll** of MEN1 and why patients often feel like impostors 
- How to balance resilience with asking for help 
- Practical advice for creating a support network and working with your medical team 

Join the conversation and know that you’re not alone. 

Join my close MEN1 community for support & discussions here

ABOUT OUR GUEST

Simon is a NCUK ambassador and MEN1 patient advocate. He writes fantastic blog articles from time to time. Click the links below:

Finding a New Role in Life After Cancer

That Fraudulent Feeling

Are you sure MEN1 can’t be influenced?
When I stopped just 'settling' for symptom management, I began carving a path to somewhere I believed impossible in MEN1: symptom-free, surgery-free, and medication-free. If you’re curious to see how I’m making this happen, join my community here.

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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The MEN1 MosaicBy Lizzie Dunn