A frustrating afternoon of trying to get Tess's blood into our USP7 biobank.

#351: Can't Check the Box If You're Rare

<p>I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autism</p>

Kids & Family

I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autism

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#351: Can't Check the Box If You're Rare

#351: Can't Check the Box If You're Rare