Have you found yourself being dismissed, overlooked or even misdiagnosed because MEN1 is such a rare disease?//

Jo Grey, CEO of AMEND Charity & MEN2a Patient shares://

1) how doctors missed her MEN2a symptoms & a psychiatrist implied she was hallucinating//
2) why she 'accidentally' became AMEND's CEO when a newsletter advert helped find her people//
3) what she does with AMEND to make noise, so that patient-needs continue to get met//

Are you sure MEN1 can’t be influenced?
When I stopped just 'settling' for symptom management, I began carving a path to somewhere I believed impossible in MEN1: symptom-free, surgery-free, and medication-free. If you’re curious to see how I’m making this happen, join my community here.

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.