The MEN1 Mosaic

#46 - Early Signs in the Mouth: Listen Up, MEN1 Parents (Dr Steffan Decker, Specialist Orthodontist)


Listen Later

What if the first signs of a child’s health issues weren’t in the blood—but in their breathing, jaw, or even sleep? I didn’t realise just how much oral health and orthodontics had clashed with my own MEN1 journey until I met Dr Steffan Decker. In this episode, he explains why mouth breathing, tongue position, and under-treated dental issues may be doing more than just affecting our smile—and why UK families might be missing crucial opportunities to intervene early.
 • Why mouth breathing matters far more than we’ve been told
 • How misdiagnosed orthodontic problems may mask deeper health issues
 • What MEN1 parents should know about sleep, growth, and jaw development
 • Why functional screening is worth doing—even if treatment comes later
 • How other cultures (and healthcare systems) approach this very differently

Dr Steffan Decker is a specialist orthodontist and airway-focused practitioner with clinics in London and Amersham. He combines orthodontics with cranial osteopathy, breathing therapy, and myofunctional approaches—treating patients not just for aesthetics, but for long-term stability and health.

Visit Dr Decker’s website here

Are you sure MEN1 can’t be influenced?
When I stopped just 'settling' for symptom management, I began carving a path to somewhere I believed impossible in MEN1: symptom-free, surgery-free, and medication-free. If you’re curious to see how I’m making this happen, join my community here.

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

...more
View all episodesView all episodes
Download on the App Store

The MEN1 MosaicBy Lizzie Dunn