July 28, 2023

47. "Securing Change For The Future" - ACTION FOR M.E.

25 minutes

Today you will hear from Sonya Chowdhury (CEO at Action For ME) as we discuss Long Covid, ME/CFS, projects such as DecodeME Study and World ME Alliance.

Action for M.E. is the only charity in the UK supporting people with M.E. of all ages and their services have often been referred to as a 'lifeline' by those who have accessed them. They are working to ensure that adults, children, young people and families living with M.E. are supported during this unprecedented time, and beyond.

Myalgic Encephalomyelitis (M.E.) is a long-term (chronic), fluctuating, neurological disease that causes symptoms affecting many body systems, more commonly the nervous and immune systems. M.E. affects an estimated 250,000 people in the UK, and around 17 million people worldwide.[ActionForME]

Social handles:

Twitter

Instagram

Facebook

Linkedin

Links:

DecodeME Study – To take part in the world’s largest genetic study into ME/CFS or find out more: www.decodeme.org.uk

Action for M.E. information, support, advocacy and healthcare services: https://www.actionforme.org.uk/get-support-now/help-and-support-for-you/how-can-our-services-help/ or call 0117 927 9551

Action for M.E. Healthcare Services: https://www.actionforme.org.uk/get-support-now/our-healthcare-services/healthcare-services-for-me/

Action for M.E. online peer support forums (one for adults and one for children and young people): https://www.actionforme.org.uk/our-community/

Action for M.E. resources for people with ME, carers and professionals https://www.actionforme.org.uk/get-support-now/info-and-support-resources/living-with-me/

Our recent FOI report: https://www.actionforme.org.uk/news/foi-report-highlights-shocking-lack-of-specialist-care/

Action for M.E. – to donate or support our work: ⁠www.actionforme.org.uk

We hope you enjoy this episode 😃

Do you have a health story to share? Or know someone who would be interested? - We hope to connect with you so do stay in touch on social media @Emp_Health or email us at [email protected]

What is SEP?

Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP.

For more info & get touch - https://www.freshrb.com/silentelephantproject

...more

View all episodes

By Silent Elephant Project