This week, uniting the clans. Getting together to make stuff happen for 
rare-disease families. Mainers are a private, reticent people. Is anybody 
out there?

This week, uniting the clans. Getting together to make stuff happen for rare-disease families. Mainers are a private, reticent people. Is anybody out there?

#60: The Rarest of All Days

<p>I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autism</p>

Kids & Family

I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autism

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#60: The Rarest of All Days

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