Meet Mahvash, a resilient, determined problem-solver and an advocate for a world where disabilities are accepted in society. She shares her diagnosis of Usher syndrome at a young age, being independent whilst having family support, and the love for her niece. Follow Mahvash's journey on Instagram and TikTok to learn more about Usher Syndrome and her challenges.

Usher syndrome is a rare genetic condition that causes hearing and vision loss, and often affects balance. It's a leading cause of deafblindness worldwide, and there are around 10,000 people with Usher syndrome in the UK.

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What is SEP? Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP.For more info - https://www.freshrb.com/silentelephantproject