The MEN1 Mosaic

#9 - How My MEN1 Diagnosis Pulled Me into a Black Hole (MEN1 Patient & Nurse Practitioner)


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How are you meant to keep yourself informed about MEN1 when even those whose job it is to have the knowledge still know so little?//

Today's guest, a MEN1 Patient & Nurse Practitioner, shares:

1) how an over-the-top reaction from her doctor-colleagues led her to believe she might only have a couple of years left to live with MEN1//

2) how practising yoga helped stop her panic episodes in the middle of the night//

3) how a combination of top medical care and self-led research means she stays positive & well in spite of everything//

Are you sure MEN1 can’t be influenced?
When I stopped just 'settling' for symptom management, I began carving a path to somewhere I believed impossible in MEN1: symptom-free, surgery-free, and medication-free. If you’re curious to see how I’m making this happen, join my community here.

Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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The MEN1 MosaicBy Lizzie Dunn