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The FED UP Act is headed to Congress and could reshape how women and girls with bleeding disorders are diagnosed, treated, and supported!
On the latest episode of BloodStream, Amy and Patrick sit down with Joe Stanco, HTC Family Nurse Practitioner and founder of the Hemostasis and Thrombosis Nursing Association, for a candid conversation about today's hemophilia care landscape and where it is headed next. We also unpack what this bipartisan legislation could mean for access, research, education, and equity in care.
In this week's I'm Fine segment, we explore the emotional weight of caregiving, the pressure to always show up for others, and what happens when your own care starts to fall to the bottom of the list.
Advocacy, science, and lived experience all in one place. Listen now and subscribe to BloodStream Podcast wherever you get your shows.
Show Notes:
FED UP Act
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
I'm Fine is presented by @SanofiUS
#bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy
Subscribe:
The BloodStream Podcast
Connect with BloodStream Media:
BloodStreamMedia.com
BloodStream on Facebook
BloodStream on X/Twitter
BloodStream on Instagram
BloodStream on LinkedIn
BloodStream on TikTok
By BloodStream Media4.9
4343 ratings
The FED UP Act is headed to Congress and could reshape how women and girls with bleeding disorders are diagnosed, treated, and supported!
On the latest episode of BloodStream, Amy and Patrick sit down with Joe Stanco, HTC Family Nurse Practitioner and founder of the Hemostasis and Thrombosis Nursing Association, for a candid conversation about today's hemophilia care landscape and where it is headed next. We also unpack what this bipartisan legislation could mean for access, research, education, and equity in care.
In this week's I'm Fine segment, we explore the emotional weight of caregiving, the pressure to always show up for others, and what happens when your own care starts to fall to the bottom of the list.
Advocacy, science, and lived experience all in one place. Listen now and subscribe to BloodStream Podcast wherever you get your shows.
Show Notes:
FED UP Act
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
I'm Fine is presented by @SanofiUS
#bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy
Subscribe:
The BloodStream Podcast
Connect with BloodStream Media:
BloodStreamMedia.com
BloodStream on Facebook
BloodStream on X/Twitter
BloodStream on Instagram
BloodStream on LinkedIn
BloodStream on TikTok

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