We Show Our Stripes for Rare Disease Day by welcoming NHF Education Specialist, Teen Impact Awards Host, and all-around wonderful advocate, Nikole Scappe to discuss her new book for rare bleeding disorders, Super Seven! Also, Amy shares a press release from NHF, WFH, and EHC on the recent Fitusiran clinical trial updates. A can’t miss episode of BloodStream!

 

Program Notes: 

Register for the Super Seven Launch Party: https://www.hemophilia.org/events/nhf-book-launch-party 

Fitusiran Press Release: https://www.hemophilia.org/news/sanofi-revises-fitusiran-dosing-regimen-to-mitigate-risk-of-vascular-thrombosis 

Show Your Stripes For Rare Disease Day with NORD: https://rarediseases.org/rare-disease-day/